As her mother lay dying in a Southern California hospital in early May, Elishia Breed was home in Oregon, 800 miles away, separated not only by the distance, but also by the cruelty of the coronavirus.
Because of the pandemic, it wasnât safe to visit her mom, Patti Breed-Rabitoy, who had entered a hospital alone, days earlier, with a high fever and other symptoms that were confirmed to be caused by COVID-19.
Breed-Rabitoy, 69, had suffered from lung and kidney disease for years but remained a vital, bubbly presence in the lives of her husband, Dan Rabitoy, and three grown children. She was a longtime church deacon and youth leader in Reseda, California, a fan of garage sales, bingo games and antique dolls. Then came COVID-19, likely contracted in late April following one of her thrice-weekly dialysis sessions. Now she lay sedated and on a ventilator, her life ebbing, with no family by her side.
âI had seen these things on TV and I would pray for those people and say, âI canât imagine what theyâre going through,ââ said Breed, 44. âAnd now I was living it.â
A single mom of two young sons, she was wrenched with guilt at not being with her mother. âYou always picture youâre going to be right by your parentâs side,â she said.
Unlike many families of dying COVID patients, Breed and her family were able to find some comfort in her motherâs final hours because of the , a UCLA Health end-of-life program repurposed to meet the demands of the coronavirus crisis. In the U.S., where more than 120,000 people have died of COVID, itâs part of a wider push for palliative care during the pandemic.
At 5 p.m. on May 10, Motherâs Day, before Breed-Rabitoyâs life support was removed, more than a dozen family members from multiple cities and states gathered on a Zoom call to say goodbye. John Denverâs âRocky Mountain High,â one of her soft-rock â70s favorites, played on speakers. Online, a chaplain prayed.
Breed-Rabitoy had been deeply sedated for more than a week, since a terrible night when she struggled to breathe and asked doctors to place her on the ventilator. Confusion abounded, Breed said. Could her mom still hear in that state? Two nights in a row, Breed asked nurses to prop a phone near her momâs ear.
âI prayed with her. I sang her favorite songs. I read her the Bible,â she said.
Finally, a nurse gently explained that her mother was too sick to recover. If they removed the ventilator, it would be to allow her to die.
Thatâs when hospital staffers described the 3 Wishes program and asked whether the family had any personal requests for her last moments. They decided on the music and the family Zoom call. Dan Rabitoy requested that a nurse hold his wifeâs hand as she died.
After it was over, family members received keychains stamped with her fingerprint and a copy of the electrocardiogram of the last beats of her heart.
âIâm grateful to have these keepsakes,â Breed said. âAll these things have been healing.â
The project was developed in Canada but co-launched at UCLA Health in 2017 by Dr. Thanh Neville, an intensive care physician who serves as 3 Wishesâ medical director. It aims to make the end of life more dignified and personalized by fulfilling small requests for dying patients and their families in the ICU.
Before COVID-19, the program had granted nearly 1,600 wishes for more than 450 patients, nearly all in person. The deathbed scenarios have varied, from music and aromatherapy at the bedside to meeting a patientâs request for one last mai tai cocktail.
âWeâve done weddings and mariachi bands and opera singers and 20 to 30 family members who could come in and celebrate,â said Neville, 41. âAnd none of this is possible anymore.â
COVID-19 has âchanged everything,â said Neville, a researcher who focuses on improving ICU care for the dying. Also a clinician, she spent weeks this spring tending to seriously ill COVID patients. Since March, her hospital system has seen more than two dozen COVID deaths.
In the beginning, visitors were strictly prohibited. Now, some may come â but many donât.
âI would still say the majority of COVID patients die without families at their bedside,â Neville said. âThere are a lot of reasons why they canât come in. Some are sick or old or they have small kids. A lot of people donât want to take that risk and bring it home.â
It has been hard to keep 3 Wishes going during a time when in-person memorials and celebrations are banned and infection control remains the primary focus. Neville even had to change the way the fingerprint keychains were made. Now, theyâre treated with germicidal irradiation, the same method that lets health care workers reuse N95 masks.
The 3 Wishes Project is offered when death is imminent: Patients are enrolled after a decision has been made to withdraw life-sustaining technology or if the chance of death is greater than 95%. The program was created to help patients, caregivers and clinicians navigate the dying process in a less clinical, more humane way. Wishes neednât be limited to three, and they can be articulated by patients, family members or hospital staffers.
The program is based on palliative care tenets that focus on the humanity of the patient amid intensive medical care, said Dr. Rodney Tucker, president of the American . Seemingly small acts that honor an individual life help counter the efficiency-driven environment of the ICU, which can be dehumanizing. Theyâre at the core of care that has been shown to ease both angst for the dying and grief for those who loved them. âIt helps the family thatâs left behind cope more successfully with the loss,â he said.
Such efforts also remind providers of the humanity of their practice, which can help them cope with the stress of witnessing death daily, especially during something as extraordinary as a pandemic, he said.
A by Neville and colleagues last year found that 3 Wishes is a âtransferrable, affordable, sustainable programâ that benefits patients, families, clinicians and their institutions. They calculated that the mean cost of a single wish, funded by grants and donations, was $5.19.
Genevieve Arriola, 36, has been a critical care nurse for eight years. When the pandemic struck, she found herself juggling medical care and emotional support more than ever. She took care of Breed-Rabitoy for three days straight, all the while communicating with the dying womanâs family.
âThis was a very delicate situation for someone who is married to her for over 20 years and a daughter who was miles away in Oregon and couldnât see her mom,â she said.
She was also the nurse who held Breed-Rabitoyâs hand as she died.
âI pretty much felt honored to be that person,â Arriola said. âI couldnât let her be alone. If no one can be there, I can.â
Weeks after her motherâs death, Breed is grappling with the loss. The last time she saw her mom was March 16, at a McDonaldâs off Interstate 5 near Grants Pass, Oregon.
The pair met for less than 30 minutes before Breed-Rabitoy headed south down the interstate, her long-planned family visit cut short by concerns about COVID. She had just learned that the local dialysis center was closed to outside patients, and she was worried about growing reports of infection and death. âShe told me, âI feel like this disease is coming after me,ââ Breed recalled.
Now, the keepsakes from 3 Wishes are placed where Breed can see them every day.
âIt added such a level of love and dignity we werenât expecting,â she said. âIt made the process of losing a loved one to COVID-19 so much more bearable.â
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