Insurance Archives - Ñî¹óåú´«Ã½Ò•îl Health News /topics/insurance/ Ñî¹óåú´«Ã½Ò•îl Health News produces in-depth journalism on health issues and is a core operating program of KFF. Fri, 10 Jul 2026 18:09:58 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.5 /wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=32 Insurance Archives - Ñî¹óåú´«Ã½Ò•îl Health News /topics/insurance/ 32 32 161476233 A New Option for Long-Term Care Costs /syndicate/long-term-care-costs-washington-state-payroll-option/ Fri, 10 Jul 2026 09:00:00 +0000 /?p=2251025 Kelly Haggett figures that a mandatory surcharge added to Washington state’s payroll tax cost her about $500 last year. But she doesn’t really mind.

“On a scale of 1 to 10 of my annoyance with taxes in general, this one is about a 2,” she said. “I see the benefits.”

The small surcharge on wages provides the funding for Washington Cares, the nation’s . It was set to begin distributing benefits July 1.

If Haggett, 67, a systems administrator who lives in Auburn, Washington, needs help with daily activities as she ages — bathing, dressing, grocery shopping, managing medications — she’ll be able to use the benefit she has accrued through WA Cares, as the program is known.

About 3.7 million workers participated last year, paying an additional 0.58% in payroll taxes. Those who contribute for 10 years will qualify for a lifetime benefit of $36,500. The amount will rise with inflation: A 36-year-old now earning about $50,000 a year who contributes $291 a year for a decade will have if she needs assistance at age 75.

Both the WA Cares mandatory premiums and eventual benefits are modest. But for older adults and people with disabilities, they can help pay for a variety of services: home care, transportation, adult day programs, home modifications like ramps and grab bars, compensation for family members who assist them, or assisted living facilities and nursing homes.

Haggett had looked into private long-term care insurance to cover those needs, but she balked. “It’s crazy expensive,” she said. And since premiums can rise, and frequently have, “you’re basically saying, I’ll pay whatever, whenever.”

Haggett knows that WA Cares can’t cover all her long-term care costs. In fact, because she was already in her 60s when payroll deductions began in 2023, and because she is planning to retire in two years, she’ll receive only half the lifetime benefit.

But “if I required care and it would protect my wife from having to spend our savings, $18,250 is not meaningless,” she said.

Washington has been working toward implementing WA Cares for a decade; the program has survived two statewide votes aimed at overturning or weakening it. Now, other states will be paying attention.

‘Most People Have Nothing’

An estimated 70% of Americans will need long-term care at some point in their lives, but “they haven’t planned for it or saved for it,” said Cathleen MacCaul, advocacy director for AARP Washington State, which supported the legislation that created WA Cares.

“People are under the misconception that Medicare will pay for this,” MacCaul said. In fact, while Medicare pays for healthcare, it rarely covers long-term care, either at home or in facilities.

Medicaid does cover long-term care, but it involves such strict limits on income and assets that “most middle-class people are left out, or they have to impoverish themselves” by spending nearly all their assets to qualify, said Richard Frank, director of the Center on Health Policy at the Brookings Institution. Those who are eligible often face lengthy waiting lists for care at home.

“Long-term care is the largest area of unprotected health risk in the United States,” Frank said. “Most people have nothing.”

Previous efforts to establish public long-term care protections have foundered. In 2010, the Affordable Care Act included , a legacy of Sen. Ted Kennedy that would have created a voluntary long-term care insurance program. The Obama administration eventually deemed it unworkable, and “it never saw the light of day,” Frank said.

The private market has also contracted. Most of the largest companies selling long-term care insurance — Genworth, John Hancock, MetLife — have exited the market. The return on their investments plummeted when interest rates fell after the Great Recession, and the number of insured people who abandoned their policies — a profitable development for insurers — was far below projections.

“The psychology of the industry was: Holy smokes, we’re losing money! We’re getting out,” said Claude Thau, who directs the annual Milliman Long-Term Care Insurance Survey. As the losses mounted and premiums spiked, consumers such as Haggett stopped buying policies. Moreover, Thau estimated, 1 in 6 applicants are unable to get coverage for health reasons.

Thus, fewer than 35,000 Americans bought stand-alone policies in 2024, compared with about 235,000 in 2010, according to a , a trade association. The average 60-year-old purchaser would, at age 80, receive a projected maximum benefit of $369 a day, Milliman reported. But the average annual premium on new stand-alone policies in 2024 — $3,265 — can seem daunting to someone close to retirement.

As the purchase of stand-alone policies has dropped, insurance companies have turned to policies bundling some long-term care benefits with life insurance or annuities. Those sales figures are climbing. Still, the association notes, only 3% of Americans age 50 or older have any long-term care insurance.

‘A Five-Alarm Fire’

That has prompted a recent spate of proposals to find public ways to protect Americans from ruinous costs that can continue for years. “This is a five-alarm fire,” said sent in May by U.S. Sen. Ron Wyden of Oregon and 16 fellow Senate Democrats to their colleagues.

The letter, more a statement of purpose than a specific legislative plan, proposed a “home care guarantee” for Medicare beneficiaries, among other efforts. Proponents expect to issue a more detailed report in the fall and to introduce a bill early next year.

A also proposed providing subsidized long-term care at home through Medicare, with beneficiaries making contributions according to their ability to pay. Like most of these programs, it would kick in when people need help with activities related to daily living or require supervision because of cognitive decline. The authors estimate that 8.2 million Americans will be eligible, far more than those who qualify for home-based care under Medicaid.

In the House, Rep. Tom Suozzi, a Democrat from New York, and Rep. John Moolenaar, a Republican from Michigan, have to create a catastrophic-insurance program for older people with disabilities. It would require them to pay for care out-of-pocket or with private insurance for the first several years before they would receive a monthly federal benefit.

Enacting federal initiatives in the current political climate seems unlikely, proponents acknowledge. The Trump administration’s plan to cut billions of dollars from Medicaid “has moved the needle backward on the accessibility of long-term care,” said Taylor Harvey, a spokesperson for the Senate Finance Committee.

So “are looking at what Washington is doing with a lot of interest,” said Norma Coe, who is an economist at the University of Pennsylvania and is tracking long-term care programs. Legislators have introduced bills in Illinois, Hawai‘i, and West Virginia; other states have task forces studying the issue.

“Long-term care is one of those conversations around every dinner table,” said Bea Rector, assistant secretary for the Department of Social and Health Services’ Home and Community Living Administration.

“Families step in,” she explained. Sometimes they can continue providing care, “but sometimes more formal care has to be put in place. That’s when people see the value of programs like this.”

Steven Russakoff knows the challenges of elder care, having provided years of support for his father, who died two years ago, and for his mother, who is now living in a nursing facility. “It’s brutal, it’s exhausting, and it’s extraordinarily expensive,” he said. The family has liquidated virtually all his parents’ assets to pay for their care.

Russakoff, who is 56 and lives in Shoreline, Washington, initially disliked WA Cares. He could handle the additional deductions (about $250 a year) from his paycheck as a director of university dining services, but he felt forced into a program he couldn’t use if he left the state to retire.

But WA Cares has already been amended several times and for many participants who move away, making him a convert. “It’s a good idea,” Russakoff concluded. “A necessary evil.”

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/syndicate/long-term-care-costs-washington-state-payroll-option/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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They Harvest the Nation’s Food, but a New Rule May Strip Them of Health Insurance /insurance/agricultural-workers-medicaid-eligibility-immigration-food-harvest/ Fri, 10 Jul 2026 09:00:00 +0000 /?p=2257673 Seasonal work. Inconsistent hours. Frequent moves. Cash payments and informal jobs. For farmworkers who rely on Medicaid, these common employment patterns could put their health coverage at risk.

It’s a heightened concern for the estimated who are U.S. citizens or legal permanent residents, as new work requirements kick in for the federal-state healthcare program that serves low-income and disabled Americans.

Starting next year in most states, many adults enrolled in Medicaid will have to prove they work, are enrolled in college or vocational courses, volunteer, or do unpaid work for at least .

Advocates say this could pose a significant challenge to Medicaid-eligible farmworkers, who frequently work more than 80 hours a month during harvest season but less in other months. What’s more, outside the harvest season, many workers take on informal jobs in construction, landscaping, or home repair for which they don’t receive formal paychecks that would prove their continuing Medicaid eligibility. Still, they can establish eligibility if they prove their average monthly income over six months is equivalent to at least 80 hours of work at the federal minimum wage.

“Having a work requirement — having to create more paperwork and more proof — is certainly extremely challenging for farmworkers and others who are low-income and who may especially have seasonal jobs, not year-round, and do have periods” when there is no work available, said Alexis Guild, vice president of strategy and programs at .

New Requirements, Additional Hurdles

Agriculture is a , and Americans to put food on their tables. Nearly 60% of those workers are U.S. citizens or green-card holders, according to the . The remaining 40% lack legal status or are otherwise ineligible for Medicaid.

Even among farmworkers with citizenship or legal status, the uninsured rate is three times that of the general population, and most farmworkers with insurance are Medicaid beneficiaries, although participation rates vary by state. According to a , 71%-79% of eligible farmworker households report participation in Medicaid.

The new Medicaid work requirements were a key provision of the One Big Beautiful Bill Act signed last July by President Donald Trump. Under the federal law, and the District of Columbia must implement the requirements by Jan. 1. A few states have the work rule early.

The 80-hour rule applies in states that expanded Medicaid, a process that began in 2014 and was tied to the Affordable Care Act. Following the initial expansions, agricultural workers with legal documentation became to have health insurance, according to a 2021 article in the American Journal of Agricultural Economics.

Immigration Anxieties

The work requirements are the latest in a long list of obstacles placed between workers and the healthcare they’re legally entitled to, Guild said. “Medicaid certainly helps because it alleviates the cost issue,” she said. “But there are still other barriers, such as transportation, taking sick leave, and finding time to visit a health center. All these factors can prevent them from actually receiving medical care.”

For farmworkers with green cards and naturalized U.S. citizens, there is another source of stress: the fear that signing up for Medicaid could put personal information in the hands of immigration authorities.

That’s what worries Luis, a 45-year-old green-card holder and Medicaid recipient who dreams of becoming a U.S. citizen. Luis — who asked to be identified by only his middle name — lives with his wife and daughter in North Carolina, where he has worked in agriculture for nearly a decade.

Speaking in Spanish, he said that when he learned about the work requirements, he knew it would be challenging for him to prove that he works 80 hours a month. “I only work on farms for six or seven months; the rest of the year I work in whatever I can find,” he said.

Republicans in Congress argue that work requirements will reduce federal healthcare spending, encourage nondisabled adults to , and preserve safety net resources for the most vulnerable populations.

Among Hispanic adults enrolled in Medicaid, 67% are already working, according to a 2025 .

The Centers for Medicare & Medicaid Services did not respond to requests for comment for this article. But in June, when its “nationwide framework” to implement the Medicaid work requirements, Administrator Mehmet Oz said it would help beneficiaries “build skills and independence through work, education, job training, or community service, creating new opportunities for themselves and their families.” Federal officials say the new requirements “could reduce poverty by as much as 2.9 million people.”

Chronic Illness

Agricultural work is one of the nation’s , and it is associated with and , including respiratory conditions. A found that 37% of male farmworkers and 47% of female farmworkers in the state had at least one chronic health condition. The new work requirements present one more barrier for those seeking care, advocates said.

“People skip checkups and screenings, and conditions that could be caught early and treated cost-effectively” aren’t, said Adriana Cadena, executive director of .

Emergency rooms often become the “natural” place to go for healthcare, Cadena added. “This drives up waiting times and costs for all of us. … And when people are sick enough that they miss work, it starts a vicious cycle of lost productivity and family economic instability that again threatens all of us.”

A Loss for Families and Children

The new federal rules also require beneficiaries to verify their eligibility at least twice a year, twice as often as previously, creating another potential obstacle.

“Letters can easily be missed, and forms may go unfilled. If people get caught up in the paperwork, they could lose coverage,” said , an assistant vice president at , a nonprofit that promotes an equitable healthcare system.

For farmworkers who travel from state to state, the process can be especially difficult.

“You have to find the time to transfer your coverage and probably find a person or organization that can help you — and that can be really hard when you’re constantly moving,” Cadena said.

The situation highlights the difficulties of navigating a complex system for individuals and families already struggling to make ends meet.

“The result,” Cadena said, “could be the loss of coverage not only for workers, but also for their families and children.”

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/insurance/agricultural-workers-medicaid-eligibility-immigration-food-harvest/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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The Politics of Health at Midyear /podcast/what-the-health-454-democrats-midterms-nonprofit-hospitals-july-9-2026/ Thu, 09 Jul 2026 17:58:36 +0000 /?p=2258172&post_type=podcast&preview_id=2258172 The Host
Julie Rovner photo
Julie Rovner Ñî¹óåú´«Ã½Ò•îl Health News Read Julie's stories. Julie Rovner is chief Washington correspondent and host of Ñî¹óåú´«Ã½Ò•îl Health News’ weekly health policy news podcast, "What the Health?" A noted expert on health policy issues, Julie is the author of the critically praised reference book "Health Care Politics and Policy A to Z," now in its third edition.

As health costs rise and insurance coverage falls, Democrats appear to be doubling down on the healthcare issue as they press their case to take control of Congress in November’s midterm elections.

Meanwhile, on Capitol Hill, Republicans — and some Democrats — are taking aim at nonprofit hospitals and whether they are delivering enough “community benefit” to justify not having to pay taxes.

This week’s panelists are Julie Rovner of Ñî¹óåú´«Ã½Ò•îl Health News, Shefali Luthra of The 19th, Victoria Knight of Bloomberg Government, and Rachel Roubein of The Washington Post.

Panelists

Shefali Luthra photo
Shefali Luthra The 19th
Victoria Knight photo
Victoria Knight Bloomberg Government
Rachel Roubein photo
Rachel Roubein The Washington Post

Among the takeaways from this week’s episode:

  • Insurers say they’re expecting to hike premiums even more next year as Affordable Care Act plan enrollment continues to drop. The current decline comes after Congress allowed enhanced ACA subsidies to expire, with many Americans publicly saying they can no longer afford coverage — even as the Trump administration attributes the enrollment drop to a crackdown on fraud.
  • Meanwhile, President Donald Trump has seized on the idea that medical providers should have end-of-life conversations with patients, even suggesting penalizing hospitals for not doing so. In 2009, a similar proposal in the ACA debate prompted the GOP to coin the term “death panels.”
  • As the midterms approach, a top Senate Democrat has teed up a proposal to cap out-of-pocket costs in traditional Medicare, an idea that could gain even more traction should Democrats reclaim the Senate. Plus, lawmakers are proposing closer scrutiny of nonprofit hospitals, with a new bill proposing the collection of more information on their finances.
  • Also, the GOP’s one-year ban on Medicaid funding for Planned Parenthood ended over the weekend, with little appetite in Congress for renewal. And separate pilot programs in Utah and traditional Medicare are testing the use of artificial intelligence in meting out healthcare.

Also this week, Rovner interviews Ñî¹óåú´«Ã½Ò•îl Health News’ Samantha Liss, who wrote the latest “Bill of the Month” report, about a Medicare Advantage patient who changed plans and got a lot of trouble in return. If you have a medical bill that’s confusing, infuriating, or inscrutable, you can share it with us here.

Plus, for “extra credit” the panelists suggest health policy stories they read this week that they think you should read, too: 

Julie Rovner: Axios’ “,” by Tina Reed.  

Shefali Luthra: Stat’s “,” by Katie Palmer.  

Rachel Roubein: The New York Times’ “,” by Chistina Jewett.  

Victoria Knight: Stat’s “,” by Isabella Cueto and Lev Facher.  

Also mentioned in this week’s podcast:

Click to open the transcript Transcript: The Politics of Health at Midyear

[Editor’s note: This transcript was generated using both transcription software and a human’s light touch. It has been edited for style and clarity.] 

Julie Rovner: Hello, from Ñî¹óåú´«Ã½Ò•îl Health News and WAMU Public Radio in Washington, D.C. Welcome to What the Health? I’m Julie Rovner, chief Washington correspondent for Ñî¹óåú´«Ã½Ò•îl Health News. And, as always, I’m joined by some of the best and smartest health reporters covering Washington. We’re taping this week on Thursday, July 9, at 10 a.m. As always, news happens fast, and things might have changed by the time you hear this. So, here we go. Today, we are joined via video conference by Shefali Luthra of The 19th. 

Shefali Luthra: Hello. 

Rovner: Rachel Roubein of The Washington Post. 

Rachel Roubein: Hi, everybody. 

Rovner: And Victoria Knight of Bloomberg News. 

Victoria Knight: Hi, everyone. 

Rovner: Later in this episode, we’ll have my Ñî¹óåú´«Ã½Ò•îl Health News “Bill of the Month” interview with Samantha Liss, about a woman who fought back against a series of insurance company prior authorization denials and won, but it wasn’t easy. But first, this week’s news. 

So we’re just a little more than halfway through the year; I thought this would be a good time to take measure of where we are in terms of healthcare politics. First, Affordable Care Act premiums. As we’ve been reporting, as data has come in, enrollment in ACA plans has dropped pretty precipitously in the wake of Congress letting the expanded covid-era subsidies lapse, with millions of people finding themselves unable to pay unsubsidized or less subsidized premiums. Now we’re starting to get a look at proposed premiums for next year, and we’re looking at more eye-popping increases. Insurers are saying they have no choice. Among other reasons for the increases, the healthiest people are the ones who are most likely to decide they don’t need or can afford to live without insurance, while the sicker people will hang on to it as long as they can, even if they have to go without other necessities. Is this the beginning of the insurance death spiral that everyone’s always been so worried about? 

Knight: Enhanced subsidies expired at the end of December 2025, and we knew we wouldn’t really start seeing the data till the summer. So we’re just now starting to see the effects, and we’re seeing, yeah … the data varies state by state, but we’re seeing a lot of people drop off, and we’re seeing premiums rise. And then that’s in addition to all of the Medicaid overhaul changes that Republicans also included in their big tax-and-spending bill last year. And so we’re starting to see those.The work requirements will go into effect in January, but some states are starting now, and they have to be in effect by next January. And so Medicaid is also a huge one, where people are starting to lose coverage as well. So I think Medicaid and then Affordable Care Act combined, we are going to see a lot more uninsured people, and I think that conversation is going to start entering the election conversation, potentially more than we’ve seen it as of now — which is really surprising, given that Democrats shut down the government last year over the ACA tax credits, and then really haven’t been talking about it as much. But I think we’re starting to see it trickle back in. 

Rovner: Yeah, and you know, Republicans say — and I don’t want to let this sort of go unsaid — that well, you know, one of the big reasons for the drop in enrollment is because there were all these phantom enrollees, people that insurance companies had enrolled, who didn’t even know they were covered, and the insurance companies were just collecting the premiums from the federal government. I’ve read too many stories about real people who said, Yeah, my insurance used to be $300 a month, and now it’s $1,100 a month, and I can’t afford it anymore. I mean, not to say there weren’t some phantom enrollees; there obviously were. We knew … that fraud is an issue, but this does feel bigger than just, Oh, we’ve gone after fraud, and so this should be the right size for the Affordable Care Act marketplace

Luthra: It’s very obvious that people have, in fact, lost insurance, like, people have said, “I have lost insurance, I have stopped paying for it because it is too expensive.” Voters have said this is a very big concern for them, because they are going without health insurance, and I mean, to your point, Julie. Yes, there is some level of fraud, of course, but also one of the data points for these phantom enrollees was people who enrolled and then didn’t use health insurance, and that’s actually very normal to not use your health insurance. I have gone many years, you know, you don’t use it some years, then you use it others, and that is what keeps the market healthy, that is why we have risk pools that work. So it seems like this is just an argument that doesn’t really stand scrutiny, and also just doesn’t really make much sense. 

Rovner: Yeah, I mean, the whole point of health insurance is, or insurance in general, is that you only use it when you need it, and that if you’re young and healthy, the people that we want to be insured, and a lot of the people who got insured when it got really cheap to get insurance with those enhanced subsidies, it’s like, Oh, I can afford, you know, $25 a month in case something happens. And then nothing happens, and so they don’t use it. Which is, again, not to say that there weren’t some phantom enrollees, we know this, but there were also, I suspect, a lot of people who had insurance and just didn’t need it during the course of the year. And that was, as you say, it was those premiums that helped pay for the sick people who actually did need to use their insurance over the course of the year. 

Roubein: Then, in talking about, as you mentioned, is insurance sort of in a spiral, , I believe it was this week, about the employer-based health insurance system. And they talked to some small-business owners who said just how expensive it is, and one of them was sort of making the decision between do I lay off employees or do I get rid of health insurance? So, like, these are just very, very real decisions that people are making, as business owners, are making: Can I cover these kind of rising prices or not? 

Rovner: And you literally anticipated my next question, which was to bring up the Stat story, which is a whole series looking at the impact of rising health insurance costs on small businesses. But it raises the broader question of: Is the era of employer-provided insurance nearing its breaking point? And what happens if employers really do start dropping insurance en masse? I mean, this, you know, obviously the first tension point comes with small business, for whom this is a bigger outlay of money compared to, you know, how much they bring in and how much they pay their workers than it is for larger companies. But this has always been the concern that at some point businesses are just going to say we can’t do this anymore. This can’t be what Republicans want, because one presumes the next step after that is, oh, you know, things like “Medicare for All” that presumably they hate a lot more. 

Luthra: Well, that’s what’s so interesting, right, is there’s so much chatter right now about this insurgent DSA [Democratic Socialists of America], yet again seems like something we have, in fact, seen happen in the past. And part of that message is Medicare for All, and what that means is maybe a little bit squishy. We don’t fully know, we never quite fully know, but it does seem like there’s a lot of interest in broadly making health insurance and healthcare more affordable. And there’s a lot of energy on the left and on this growing more progressive movement to use government as a vehicle for health insurance, and I mean, if you have fewer employers providing health insurance, then that does strengthen the case that someone should step in. 

I think I’m still not fully sure if we can say when or what a breaking point looks like, because employers have been talking about this for so long. I mean, as long as a lot of us have been covering healthcare, there’s been talk about employer healthcare expenditures getting unsustainable, and yet here we are still in this system. The inertia continues. And the other thing that I keep thinking about is what about public sector workers, right, unions who have negotiated for these benefits that they are not going to give up, and those are often very good health insurance plans. It’s just so complicated because our system is so fragmented to get us toward having health insurance for people. 

Rovner: Yeah, this is like my fourth time going around with: Are employers going to stop providing health insurance? Well, meanwhile, to continue the theme of this week, which is everything old is new again, we have the return of death panels and Medicare catastrophic health insurance. First, death panels. Back in 2009, during the debate over the Affordable Care Act, there was a bipartisan provision that would have paid doctors to have end-of-life conversations with Medicare patients — things like: Do you want to be kept alive on a ventilator? Republicans called them “death panels,” and the ensuing controversy nearly sank the entire bill. In the end, the provision was jettisoned as more trouble than it was worth. Fast-forward to last month, and lo and behold, the Trump administration is proposing to regularize end-of-life conversations, including by possibly penalizing hospitals that don’t record a patient’s end-of-life wishes in their electronic medical records. Now, dare I say, this was considered by most bioethicists and other experts to be a good idea back in 2009 and a good idea now in terms of good patient care. But what happened to make Republicans do such an about-face, other than it’s no longer part of a bigger bill that they hate. As my fellow health reporter friend Jonathan Cohn put it: Some of us would like our summer of 2009 back, please. 

Luthra: I mean, part of it is like political convenience, right? This is something that most people know is, in fact, a good thing. I mean, I think when you explain it to a consumer, also in the correct and not misleading terms, yes, people would like the doctors to know what they would want if they had a medical emergency or catastrophe. That is good policy. But the death panel discourse was somewhat cynical — I think that’s noncontroversial to say — that this was a targeted political attack to try and bring down the Affordable Care Act. And so, of course, when you are divorced from those politics, this is just something that is practical when you think about the actual implementation of health insurance and provision of care. 

Rovner: I just didn’t want to let it go unnoticed that this was something that the Republicans used for great political gain back in 2009 reappearing 16 years later as “noncontroversial.” We’ll see if it stays that way. And going back even further in time, a group of Senate Democrats, led by Finance Committee Ranking Member Ron Wyden, have introduced a bill to cap annual out-of-pocket costs to patients on Medicare at $5,000 per year. What, you say? How can Medicare be basically the only insurance policy in America with no cap on what patients can be required to pay for long hospital stays or expensive outpatient care? Well, let me tell you a story of the first big bill I covered back in the late 1980s. It was called the Medicare Catastrophic Coverage Act. It did create an out-of-pocket cap for Medicare, but it was financed by a surtax on wealthier Medicare beneficiaries themselves, and after a not-always-truthful campaign, not unlike the one over death panels, Congress actually repealed the law about 18 months after it passed, in 1989. So, after almost 40 years, will Congress finally put Medicare in line with just about every other health insurance policy on the planet? Or will they stumble, as usual, about how to pay for it? Because it would be expensive to put a cap on what patients could be asked to pay for Medicare. 

Knight: We’re starting to see Democrats really trying to release a lot of proposals now, particularly around healthcare, trying to contrast themselves with Republicans, and being like, look what they did, they let enhanced ACA subsidies expire, they did this Medicaid overhaul, everyone is dropping coverage. Here’s our solution: Republicans took your coverage away, we want to give you coverage, we want to help you reduce costs for your healthcare. And so I think we’re seeing that Sen. Ron Wyden, ranking member of the Finance Committee — if the Senate somehow becomes a Democratic majority, then he would be Finance chair, most likely. He has been putting out a lot of proposals around healthcare, trying to show what he would do if he does gain a gavel in the next Congress. I think the Senate is less likely that it’s going to turn Democratic. I think we’ll probably have a split Congress, if I have to guess, and perhaps the House goes Democratic. So, I think the long and short of it is, I think this proposal is unlikely to go much of anywhere for a while, but it is something that I think we could see have some more traction potentially in a few years if there is another Democratic trifecta or something like that. I think Democrats want to build more on a lot of proposals they put together in the Inflation Reduction Act, capping cost in Medicare, capping cost of drugs, things like that. This would build on that. 

Rovner: Yeah, and keeping with our themes, this is sort of a Let’s make a case for this year’s midterms that we’re the party of health. Rachel, you wanted to add something. 

Roubein: I agree with what Victoria was saying. It’s messaging [indecipherable] ahead of the midterms. It’s, I mean, it’s definitely an interesting, long-standing, as you noted, issue, Julie, but I mean, generally both parties view seniors, older adults as really important voting blocs, and we tend to see various proposals around Medicare around these times, or even accusations from both parties. I think it was in 2023 Republicans and Democrats were accusing each other of cutting Medicare. It’s kind of a tradition of, like, “Mediscare,” as you will. 

Rovner: Yes, actually, and after the Affordable Care Act passed, the Republicans regained control of Congress, talking about not so much the rest of the Affordable Care Act, but the Medicare cuts in the Affordable Care Act, which, of course, were made to pay for a lot of the other things in the Affordable Care Act. 

Well, next up, hospitals in the crosshairs. Now, this is one of those occasional moments in health policy when policymakers in Washington in both parties dare to criticize hospitals, which are powerful political voices, because not only is there one in every congressional district, they are also usually major employers, as well as taking care of sick people. But for decades now, Democrats and Republicans have asked whether nonprofit hospitals, in particular, are providing enough community benefit to earn their right not to pay taxes. Before leaving for the July 4 recess, the House Ways and Means Committee approved a bill that requires a lot more transparency from hospitals about how they justify their tax-exempt status. A related issue has to do with a program that’s nerdily referred to as 340B. It requires drugmakers to sell to nonprofit hospitals and community health clinics at deep discounts. Then those hospitals can turn around and bill insurers, and sometimes patients, full prices for those drugs and keep the difference to help pay for otherwise uncompensated care. Drugmakers hate it, of course, saying it’s being abused. Hospitals say it’s critical to their ability to provide care, and now the administration and Congress are both trying to reform it. So, this House Ways and Means bill addresses both issues. Victoria, you covered it. What would the bill do? 

Knight: Yeah, it’s really interesting. I think Congress is kind of a hamster wheel always, with which healthcare entity they want to go after. And so, last Congress, it was pharmacy benefit managers, which is the third-party group that moves between drugmakers and pharmacies and helps with dispensing drugs. They went after them. They hit PBMs really hard in the government appropriations bill that was passed earlier this year, and so now PBMs are kind of off the target, and I think hospitals may be next. But hospitals are really, really hard to go after. But we’re starting to see a lot more movement in this Congress on hospitals, and so this bill, it’s basically a new reporting requirement. It would require nonprofit hospitals to, yeah, justify their tax-exempt status by giving a lot of data to the government, and so that would be how much charity care they’re providing compared to their financial assistance policy. So, how much did they say they’re going to help people? How much are they actually helping people? Also, their community benefit, and a lot, just a lot more financial data as well. And there’s kind of like a tiered system within the bill, so bigger hospitals that make more money, they would have additional reporting requirements, and that includes on the 340B drug discount program. And so, what are they paying for the drugs? What are they giving them to patients for? That kind of information. Hospitals were very not happy with this. It was advanced out of Ways and Means, but on a partisan basis. So we’ll see if it has any more movement. I’m doubtful I would make it to a further place on the House floor or something, but you never know. We’ll see. 

Rovner: I know there’s efforts in Senate and the Finance Committee, and in the HELP [Health, Education, Labor, and Pensions] Committee to looking at 340B. Sen. [Bill] Cassidy’s been looking at it too, although you know it’s the fight between two behemoths, the drug industry and the hospital industry, and as long as Congress has been grappling with this, they have not been able to come up with a useful compromise that works for everybody, which is why I think they keep grappling with it. 

Knight: Yeah, Energy and Commerce members just released a new bill this week on it. It’s really seeing a lot more action, and the program really has, the 340B drug discount program has really increased the usage over time if you look at the stats. So it makes sense that maybe Congress will step in, but it’s really difficult to find a solution. Drugmakers and hospitals are both OK with it, and so yeah, it will continue. 

Rovner: As we like to say, the status quo likes to status quo. All right, we’re going to take a quick break. We will be right back.  

So, July 4 marked the one-year anniversary of the signing of that big Republican budget bill, and with that, the one-year ban on Medicaid funding for Planned Parenthood expired. You may or may not recall that in order to get the provision into the budget bill in the first place, past the Senate parliamentarian, the ban had to be only for a single year. That means Planned Parenthood clinics around most of the country can once again bill Medicaid for non-abortion services like birth control and cancer screenings and STI testing. And anti-abortion activists are big mad. Shefali, did Congress not extend the ban because it didn’t want to, or because it couldn’t? And what might this mean for the impending midterms? We haven’t seen a lot of reproductive health in this sort of go-round either. 

Luthra: I mean, I think when we look back to a year ago, there’s a reason that originally abortion opponents wanted this to be a 10-year defunding. That was not possible due to the parliamentarian’s interpretation of what could be kept in the reconciliation bill. So we had this one-year program instead. And even at the time, I talked to abortion opponents, whom I reconnected with again just now, and there was never really a very strong belief that this would be politically viable to renew months before a midterm election, because Republicans have a very slim majority, as we’ve discussed many times on this podcast, and defunding Planned Parenthood is unpopular. KFF has done great polling that shows that this is very unpopular, and so it’s just a very, very big ask to get Republicans, especially those in vulnerable seats, those that went blue in the presidential election, to vote to defund Planned Parenthood once more. I think what is really interesting is you are continuing to see Republicans get a lot of pressure from abortion opponents to take this up again, and so far there hasn’t really been much movement. I think it highlights how difficult it has been for the anti-abortion movement to get really concrete victories in the first two years of a Republican trifecta. This was their biggest win, and it’s over. And they have something to show for it, right? Maybe around two dozen Planned Parenthood clinics shut down between last July and this July. But if that’s the biggest thing you get in the first Republican administration and congressional majorities since the overturn of Roe v. Wade, that’s probably not what they had hoped for, or what they would have expected coming into this. 

Rovner: Yeah, and as we have discussed, anti-abortion activists are also big mad that the Trump administration has not reversed the FDA’s loosening of regulations on the abortion pill mifepristone that allows it to be sold via telehealth over state lines. A new law taking effect in Iowa this week bars Iowa residents from getting medication abortion from Iowa providers via telehealth. But, like other states with even stricter abortion bans, that law doesn’t really touch telehealth providers in other states with shield laws from prescribing and sending those same medications to Iowa residents. That’s what the anti-abortion forces really, really, really want, right? 

Luthra: Yeah, and it’s just, it’s legally very difficult for them to come up with a framework that will prevent that interstate telehealth, unless the federal government intervenes, and since they aren’t getting much movement from the administration, that is why they are putting so much emphasis on federal courts. And we have so many legal challenges to mifepristone in the works. We had one that very briefly interrupted telehealth earlier this year. That case is still ongoing. It’s possible that it yields some sort of policy implications before the midterm elections, though we’ll see. But this is just a very difficult situation to stop interstate telehealth, unless you have someone with authority beyond state governments — and really that is federal courts, and that’s the federal government. 

Roubein: You can imagine this is going to come up when there’s a new Food and Drug Administration commissioner named. This is something that Sen. Josh Hawley, Sen. Bill Cassidy, they will be asking about this and pushing on this because they were very upset with how former FDA Commissioner Marty Makary handled this. 

Rovner: By basically continuing to put it off, although to some extent we don’t know whether that was Makary’s doing or it came from higher up at HHS [Department of Health and Human Services]. I’m interested, apparently there’s going to be a confirmation hearing for attorney general nominee Todd Blanche next week, and I think some are going to ask him, because one outlet that the anti-abortion movement sees is getting the Justice Department to settle the lawsuit filed in Louisiana, challenging the FDA’s sort of down-regulating, if you will, of mifepristone. So they’re saying that the Justice Department should simply settle that lawsuit. Would that actually overrule FDA? I’m still a little bit vague on how that might work. 

Luthra: That feels legally tricky, because there are other parties in the suit as well. The manufacturers have stepped in, and so there’s a real possibility that even if the Justice Department moved to settle, I mean, I don’t think we can say that this doesn’t necessarily end the case or end mifepristone’s availability through telehealth. And realistically it just seems that you need something stronger and perhaps through a different avenue. And, again, I think it’s really important for us to underscore that this is all pretty unpopular policy, and the Trump administration knows it is unpopular, and they probably would not want abortion and abortion restrictions to be in the national spotlight heading into a midterm election where they are already looking vulnerable. 

Rovner: Yeah, well, I’ll be interested to watch the attorney general confirmation hearings, which is not something I would normally say. While we’re on the subject of reproductive health, in general, in the fallout from last week’s narrower-than-expected Supreme Court decision upholding birthright citizenship, some Trump officials are now floating the idea of banning noncitizens from visiting the U.S. while pregnant to prevent them from giving birth to U.S. citizens. How would that work? 

Luthra: Just seems kind of difficult to implement, maybe more the kind of thing that you talk about on Fox News than the thing that you actually have a firm policy plan to put in place already. People are not given visas to come here solely for giving birth. Already people largely do not travel very late in pregnancy, because it is not a good idea. I think there’s something to be said for the fact that people will be looking in conservative spaces at ways to try and restrict immigrants from being here, find new pathways to prevent people from giving birth here, especially when they are immigrants. We had a hearing in Texas earlier this week where they were looking at surrogacy, and part of the argument there that conservatives are making is they believe that surrogates in the U.S. are being hired by people abroad to give birth to babies that will have U.S. citizenship. Again, this is all, like, very complicated, but I think what it shows is that the birthright citizenship issue is not going away, and that conservatives are looking for some kind of new strategy to weaken that protection that is very clearly spelled out in the Constitution. And we will see where that takes us. 

Rovner: Yeah, and to be clear, I mean, just like with fraud, there is birth tourism. There are, you know, particularly, I think there’s a lot of people from China going to the Northern Marianas, which is kind of halfway across the Pacific and a U.S. territory, to give birth. I think someone said there were more Chinese residents giving birth in Northern Marianas than there were residents of the Northern Marianas. So, I mean, there are problems, but that’s, as you point out, that’s already illegal. That’s not something that Congress would need to act to make illegal. Birth tourism is not a thing, but if you are born in the United States, then, said the Supreme Court, at least a small majority of the Supreme Court, you are a citizen, at least for now. 

All right. Finally, this week, two interesting stories about artificial intelligence in healthcare. First, Utah is in the midst of a pilot project allowing an AI chatbot to approve some prescription refills. Doctors, including the state’s medical board, are not thrilled with this. They’re worried about liability if something goes wrong, among other things. They’re also worried about a slippery slope. It’s just some relatively safe prescription drugs for now, but soon it will be all prescriptions, then lab tests, then who knows what? On the other hand, the makers of these tools say they’re exactly what’s needed to overcome the shortage of doctors and other health professionals. Let technology take over the routine stuff. Now, call me old-fashioned, but until customer service AI works a lot better than it does now, I’m not sure I’m ready for AI to be making my medical decisions, even my routine ones. 

Roubein: I mean, it’s definitely a controversial practice, as we’ve been seeing. I think doctors are sort of grappling with what is going to be the future here. 

Rovner: I mean, some of it can be helpful. We have sort of AI scribes now who can take notes, so that when you’re talking to your doctor, your doctor isn’t staring at a screen the entire time. I think everybody thinks that’s a good thing. But you know, then how accurate are the AI scribes? I know that just in voice transcription, it’s still not 100%. If you get a symptom or a drug wrong, that could be a bigger deal than when you’re doing a podcast transcript. 

Knight: There’s a great plot on The Pitt about this. 

Rovner: That’s right. I forgot. 

Knight: I know it’s super important, though. It was super important for the patient that the transcription was wrong. It was wrong. It said that they had a condition they did not have, so that could be really problematic. 

Luthra: I mean, one thing that I’ve sort of mulled over in other areas, as we see this push toward AI in certain areas, if it continues, is whether eventually we see some kind of divergence. I think there’s an open question, right? Do people actually want more things automated, or do they want more things done by a human? Do we see a world in which people pay a premium for things that are done by people, as opposed to AI, or vice versa? I mean, I think this is all just so early, but there’s a real possibility, at least it seems to me, that we see sort of different tiered offerings based on what’s perceived as better. And that raises questions also of who gets things that are maybe better versus who doesn’t, and what is better? I think there’s just so much that we don’t know, but there’s just a lot for us to sort of observe and interrogate as reporters. 

Rovner: I heard a story yesterday about robots climbing Mount Everest, and my only thought was: Why? It’s one thing if robots are doing things that are helpful, but it’s like, why would you need a robot to climb Mount Everest? Well, speaking of cautionary tales, a story from my Ñî¹óåú´«Ã½Ò•îl Health News colleague Darius Tahir details how the launch of a pilot in six states to test an AI-powered prior authorization system for Medicare also hasn’t been smooth. Quoting from the story: “Patients, doctors, and other healthcare professionals who spoke with Ñî¹óåú´«Ã½Ò•îl Health News say the effort has created confusion, errors, long wait times, and stress.” The opening anecdote of the story is about a patient who was asked to drive an extra 2½ hours literally just to fill out a piece of paper. Again, the goal here is a valid one. Medicare wants to make sure that frequently abused medical services are really necessary. That protects both patients and the taxpayers who pay the bills for Medicare. But the concern is that maybe these systems aren’t quite ready for prime time. I mean, I feel like that’s sort of the bigger thing here is that we’re launching this stuff before it’s ready, not that we’re wanting to use it. 

Roubein: I thought this was a really interesting story, because this is a program out of the CMS innovation center [Center for Medicare and Medicaid Innovation], which was created by the Affordable Care Act, and the CMS innovation center is wonky; it’s there to test Medicare experiments. You don’t really always hear a lot, just it doesn’t always make like a huge splash about what’s happening. But this one has. You’ve heard talk about this in Congress, and concerns about this, particularly within Washington state. And I thought this was a really good story, saying this happened so quickly, these are actually what’s happening, sort of on the ground, because the theory with these models is, if they work well, they can be expanded, they can become a permanent part of the Medicare program. In theory, these are tests. 

Rovner: Yeah, whenever we talk about the innovation center, I point out it’s just as valid to have tests that don’t work, because then you can see what doesn’t work and try something else. Yeah, and it’s possible that this will straighten itself out at some point. It is off to — as many of these AI tests are — it’s off to a bit of a rocky start. All right, that is this week’s news. Now, we’ll play my “Bill of the Month” interview with Samantha Liss, and then we will come back and do our extra credits.  

I am pleased to welcome back to the podcast my colleague Samantha Liss, who reported and wrote the latest Ñî¹óåú´«Ã½Ò•îl Health News “Bill of the Month.” Hi, Sam. 

Samantha Liss: Hi. 

Rovner: So, this month’s patient had the nerve to change Medicare Advantage plans. Those are the private plans that often cover more out-of-pocket costs than regular Medicare, but also limit choices, and as she found out the hard way, sometimes limit needed care. Tell us who she is, the ailment she’d had for two decades that needed treating. 

Liss: Yeah, thanks for having me. So I wrote this month about Margaret Hvatum. She lives outside St. Louis, and she is a part-time computer science professor. And she has a weakened immune system due to a rare condition known as primary immunodeficiency, and essentially it makes it difficult for her body to fight off infections. 

Rovner: So she’d been treating it successfully for a while, right? 

Liss: Yeah, she had. She relied on a drug known as Hizentra. 

Rovner: And Hizentra is what I would call a moderately expensive drug, not one of those that costs hundreds of thousands of dollars a month, which there are some that do, but this one was closer to $8,000 a month. And she had gotten prior authorization to take this drug from her previous Medicare Advantage plan, right? 

Liss: She did. That’s correct. 

Rovner: And it had been serving her well for some time? 

Liss: Yeah, she really liked it. It worked well for her. 

Rovner: And she was running marathons, as I noted. 

Liss: Yes, she … I think running, it’s safe to say running is an obsession for her. She … there’s not many races she hasn’t participated in. In fact, when she was vacationing over the summer, she sent me pictures from a marathon she completed in Norway. So it’s definitely what she loves to do in her spare time. 

Rovner: So a patient with a serious condition being successfully treated, she changes Medicare Advantage plans, and lo and behold, her new plan says, yeah, nope, we’re not going to approve your taking this drug anymore. Now, I thought Medicare Advantage plans had promised last year to stop using so much prior authorization and making patients and their doctors jump through bureaucratic hoops to get needed care. Why did she need to get prior authorization for this drug again

Liss: Yeah, that’s a really good question. I thought the same thing. Humana and many other Medicare Advantage plan insurers had made commitments that they were going to ease this burden of requiring prior authorization. And when I asked about Margaret’s case, they said … Humana told me that these commitments are for medical services only and do not apply to prescription medications, which surprised me, actually. 

Rovner: Yeah, it surprised me too. So, Humana, her new plan, denies her the drug, she misses her medication, promptly ends up in the hospital with an infection, which her new insurer declined to pay for, too, right? 

Liss: Right. 

Rovner: So, what ultimately happened with the bills, both for the drug and the resulting hospital stay? 

Liss: Yeah, so Humana reversed their initial denials, and I think, you know, one takeaway for us, for the readers and listeners here, is that patients should appeal prior authorizations because they often get their denials reversed. And, in fact, according to our colleagues at KFF, 81% of Medicare Advantage appeals were partially or fully overturned in 2024. 

Rovner: So is there a takeaway here, besides just making a fuss? I mean, according to your story, Margaret and her husband are considering moving to Norway because he’s a citizen and they can qualify for that country’s national health insurance. That feels a little bit extreme and not possible for many people. 

Liss: It does, doesn’t it? Yeah, you know, it can be an exhausting process, is what experts told me, because prior authorization too often puts the onus on patients and doctors, who also get frustrated, too. But you know, I think the real takeaway is: Appeal. 

Rovner: Don’t take no for a final answer. 

Liss: That’s right. 

Rovner: Samantha Liss, thank you very much. 

Liss: Thank you. 

Rovner: OK, we’re back. It’s time for our extra-credit segment. That’s where we each recognize a story we read this week we think you should read, too. Don’t worry if you miss it. We will post the links in our show notes on your phone or other mobile device. Shefali, you chose first this week. Why don’t you go first? 

Luthra: Sure. My story is from Stat. It is by Katie Palmer. The headline is “.” And Katie wrote about a secret-shopper study that was published in JAMA, looking at how easy it is to now get GLP-1 drugs and how little oversight there is from doctors. I think this kind of research is so interesting, because anyone who talks to anyone who has gotten GLP-1, or anyone who opens their social media, or sees ads on the internet, has probably figured out that it is very, very easy now to get a GLP-1 drug, even if you don’t medically qualify for them, typically. And that is really complicated, because these drugs have a lot of benefits, including many we don’t know about. However, they are also relatively new. There are a lot of things we don’t know about them still. They probably are not a good fit for everyone, but … 

Rovner: They have a lot of side effects. 

Luthra: Yes, and there’s a lot of societal pressure on people potentially to be a lot thinner in a world where GLP-1s are more ubiquitous. And I think all of that just really deserves interrogation, deserves scrutiny. It is completely changing our culture and our health as a society, and I really appreciate that this story just put some numbers and put some heft toward what people have probably observed. But now we can say, yeah, this is actually a thing and it deserves scrutiny. 

Rovner: Yeah, it definitely does. It was really good study. Victoria. 

Knight: I also have a Stat story for my extra credit. It is called “.” And I’m always interested in lobbying and just the dynamics of power in Washington, and I thought this is a really good look at the alcohol industry, and how they wield power in Washington, kind of a peek behind the curtain. And it shows, it kind of begins the story with an anecdote about how a former staffer of the American Cancer Society felt bad for telling a reporter or kind of downplaying the risk of alcohol to cancer to a reporter back in the day, and then had to apologize to the reporter. And so it’s showing how lobbyists in the alcohol industry have influenced things like the American Cancer Society or other entities to not fully talk about the risk of alcohol related to cancer, or just generally the health risk of alcohol. So, this did a really good job of connecting the dots of who is connected to who in D.C. in the alcohol industry, and what lobbyist is married to this person, and just really interesting to show how the alcohol lobby is still trying to wield influence at a time when really a lot of Americans are not drinking as much as well. And so they’re trying to hold on to their power. Will that still be successful? I guess we’ll see. But yeah, it was great. 

Rovner: Yeah, it’s part of a series on the dangers of alcohol. It’s really, really interesting. Really well done. Rachel. 

Roubein: My extra credit this week is “” by Christina Jewett of The New York Times. I thought it was an interesting broad, sweeping look at tobacco policy under Trump, particularly looking at some of the cuts last year. And so Christina starts out the story by describing ads that we’ve all seen, I think, are all kind of part of the cultural moment of trying to stamp out tobacco use, such as one with, like, a man with a hole in his throat using a voice box to speak, that were powerful. Christina reports that the CDC’s 14-year ad campaign went dark last year, and that was several moves by the Trump administration. That change unraveled parts of the government’s anti-smoking initiative. She also writes about how the CDC’s Office on Smoking and Health, which managed that campaign and worked with states on smoking cessation measures, has been shut down for more than a year. She said in recent weeks CDC has given states small funding to air ads from the campaign’s archive, but there has been an impact where, in interviews with people who ran quit lines in several states, calls have plummeted, along with enrollment in programs that offered counseling, nicotine, gum, and patches. And some of this comes — as you know, Secretary Robert F. Kennedy Jr. talks about chronic disease a lot, but public health experts that I’ve spoken to in the past have pointed to kind of a contradiction here, where there is not much talk about trying to reduce the rates of smoking, which is a major cause of chronic disease. From the HHS’ response to Christina, they said that the CDC “remains committed to tobacco prevention control and continues to support this priority through outreach, education, and surveillance.” 

Rovner: Yeah, it was a really, really good piece. Well, my extra credit this week is from Tina Reed at Axios, and it’s called “.” It seems that the combination of peptide popularity and cryptocurrency payments are helping Chinese fentanyl manufacturers make more money at less risk from selling those loosely regulated peptides instead. Said one expert quoted in Tina’s story: “They departed from a trade in which they could be sanctioned or indicted by the U.S., and reappeared in a very lucrative scene that has widespread buy-in.” Um, yay, capitalism. Really, really interesting story. 

All right, that is this week’s show. Thanks to our editor, Emmarie Huetteman, and our producer-engineer, Francis Ying. We also had production help this week from Taylor Cook. A reminder: What the Health? is now available on WAMU platforms, the NPR app, and wherever you get your podcasts — as well as, of course, kffhealthnews.org. Also, as always, you can email us your comments or questions. We’re at whatthehealth@kff.org. Or you can still find me on X , or on Bluesky . Where are you guys hanging these days? Victoria. 

Knight: I’m on X. 

Rovner: Shefali. 

Luthra: I’m @shefali on . 

Rovner: Rachel. 

Roubein: on X; at Bluesky. 

Rovner: We’ll be back in your feed next week. Until then, be healthy.

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2258172
My Search for a Psychiatric Bed in an Overburdened Health System /health-industry/psychiatric-bed-shortage-overburdened-health-system/ Thu, 09 Jul 2026 09:00:00 +0000 /?p=2245238

If you or someone you know may be experiencing a mental health crisis, contact the 988 Suicide & Crisis Lifeline by dialing or texting “988.”

Eight days before my 33rd birthday in April, a social worker at a crisis clinic near Denver determined I was an imminent danger to myself. She placed me on an involuntary 72-hour mental health hold.

What came next wasn’t treatment, but a search for a bed. Clinic staffers called area hospitals with inpatient psychiatric units, asking if they had available beds. They didn’t. So, I was told I had to spend the night at the clinic, which is open 24/7. I settled into a recliner, trying to make myself comfortable as my mind drifted in a blank, disassociated haze. Sleep came in brief bursts.

Since the 1950s, the United States has seen a nationwide due in part to deinstitutionalization and the rise of antipsychotics. But that has created a critical shortage for those needing help. From 2011 to 2023, the number of hospitals with inpatient psychiatric units , according to a 2025 study. Another study from that year found that this country has 28.4 inpatient psychiatric beds per 100,000 people — not even half the 60-bed ratio researchers frequently refer to as the .

The shortage has created what the American Psychiatric Association : emergency rooms overwhelmed with people suffering from severe mental health illnesses, inpatient stays prematurely shortened to speed up bed turnover, and acutely ill individuals left without critical care.

A pen-and-ink illustration shows a scene in three panels. 1 (left): A woman looks up, concerned. She then looks down at her hands, which are shaking over an intake form on a clipboard. 2 (center): An intake nurse talks to the woman, who is sitting in a chair with one leg folded over the other. 3 (right): She tries to answer a question on the form, which is obscured but hints at "why do you feel like you want to..." She scribbles out an answer and tries again. Below, she's seen nervously twirling her hair around her fingers. In the margins of the page, a thunderstorm fills the borders.
(Oona Zenda/Ñî¹óåú´«Ã½Ò•îl Health News)

“Where are these people going?” said , an assistant health policy professor at Rutgers University, who co-authored those 2025 studies. “For people who don’t receive this care, they don’t just go away. How is it affecting them? Society? Their families?”

Meanwhile, the White House shut down the part of the national suicide hotline catering to LGBTQ+ youth, President Donald Trump’s 2027 budget proposal calls for cuts to agencies , and Health and Human Services Secretary Robert F. Kennedy Jr. recently announced a plan to .”

A Fractured System

I was already intimately familiar with the country’s fractured mental healthcare system before I was involuntarily committed. What I had yet to experience myself, I saw through my wife: waitlists, outpatient programs stretched beyond capacity, and inpatient psychiatric care so scarce that access often depends on surviving a crisis severe enough to justify it.

She died by suicide after we had separated.

As the years passed, grief and anxiety pushed me from observer to patient.

At the crisis clinic, I woke up the following morning disoriented and groggy. In the bathroom — its door deliberately unable to latch, swinging both ways so staffers could enter in case of an emergency — I stood at the sink and watched the faucet run, trying to piece together how I had ended up here.

A hand-drawn pen and ink illustration. Three panels are set up in a triptych style. 1 (left): We see a scene, through a bathroom mirror, from a memorial of the main character's wife. The wife's picture is obscured by a large flower. There's a condolence card and medical bill on the table in front of the picture frame. 2 (center): The main character's face is reflected in a bathroom mirror as she washes her hands in rushing water. 3 (right): Medical bills, legislation, and a hand holding a pill bottle are all visible in a collage. Around the three panels, water gushes down from above and floods the bottom half of the page.
(Oona Zenda/Ñî¹óåú´«Ã½Ò•îl Health News)

America’s history of treating mental illness is long and complicated.

The 19th and 20th centuries saw the removal of people with severe mental disorders from jails and — squalid facilities designed to house the poor — to state asylums that (though they ultimately became ). From the 1860s to the 1930s, the number of psychiatric hospitals increased dramatically, according to the American Psychiatric Association, and by 1955, the number of psychiatric beds in the U.S. peaked at more than half a million.

However, owing to the development of antipsychotics, the belief that psychiatric institutions were inhumane, and President John F. Kennedy’s 1963 to free thousands of Americans from a life in institutions, many state hospitals shut down. An estimated for adults and kids are left in a country where more than 14 million experience severe mental illness each year.

Two years after JFK’s legislation passed, a new policy prohibited federal Medicaid funds from covering inpatient psychiatric care in facilities . The goal was to encourage states to move patients out of large, often substandard psychiatric institutions into community-based care settings.

The consequences of these changes, however, have been far-ranging. People with severe mental illnesses are often forced to as they wait for a bed to open. The length of stay in state psychiatric hospitals , according to research by the Treatment Advocacy Center, a national organization focused on eliminating barriers to the treatment of severe mental illness. And some people with mental illness .

From 1986 to 2014, as the behavioral health crisis intensified, mental health expenditures in the U.S. rose from $32 billion to $186 billion — though the proportion of that spending allocated to inpatient care .

This period also recorded major policy shifts affecting inpatient hospitalization rates, notably the 1999 U.S. Supreme Court decision in Olmstead v. L.C. The ruling shifted care away from psychiatric facilities by mandating states to people with developmental and mental disabilities.

“The road to hell is paved with good intentions,” said Leslie Carpenter, legislative advocacy manager at the Treatment Advocacy Center. “A lot of these bills, including the Community Mental Health Act, were really well intended and ended up with adverse consequences.”

For me, that next day at the clinic passed both painfully slowly and in a blur. A staff member I hadn’t met before told me they were still reaching out to hospitals across the region. The search for a bed continued.

A hand-drawn pen and ink illustration. Three panels are set up in a triptych style. In each, the main character is trying to figure out a comfortable way to sleep in the medical recliner. Dali-esque melting clocks float around her. Paper legislation frames the bottom of the page.
(Oona Zenda/Ñî¹óåú´«Ã½Ò•îl Health News)

‘No One Wants To Pay for Any of This Care’

Last year, members of Congress introduced two bills to change the 16-bed Medicaid funding cap at inpatient psychiatric facilities, the and the , which would increase the cap to 36 beds. Both have stalled in the House.

According to the Congressional Budget Office, a federal agency that analyzes budgetary and economic issues, eliminating the 16-bed limit would increase Medicaid expenditures from 2024 to 2033.

“No one wants to pay for any of this care that people need,” said Colorado state Sen. , a Democrat who has witnessed limitations to Colorado’s mental healthcare system firsthand because her son has schizoaffective disorder.

In lieu of federal action, states are stepping up to bridge the gaps.

Colorado, 15 other states, and Washington, D.C., now operate under waivers allowing Medicaid to fund inpatient facilities for mental health treatment, according to KFF data. Seven additional states have waivers pending. One 2025 study found that these waivers may be tied to fewer hospitalizations, emergency department visits, and incarcerations .

Yet even local efforts to improve mental healthcare face resistance. In California, Colorado, Iowa, Missouri, Nebraska, and New York, locals have pushed back against proposed psychiatric facilities for minors, claiming such facilities will worsen safety and lower property values. Behavioral health advocates have disputed these claims and argued they are rooted in stigma.

That psychiatric facility in Colorado was . The state has nearly 20 inpatient beds per 100,000 people, , according to 2022 data across all 50 states plus Washington, D.C., collected by the Treatment Advocacy Center. Wyoming ranked first with 47.3 beds per 100,000 residents, although, as the least populous state, it has only 275 total inpatient beds compared with California’s 5,703. Minnesota ranked last, with only 4.3 inpatient beds per 100,000 residents.

While increasing the number of inpatient psychiatric beds is vital, mental health advocates are also calling for , such as peer support specialists and clubhouses, where people with serious mental illnesses can learn life skills and find community.

A hand-drawn pen and ink illustration. Three panels are set up in a triptych style. 1 (left): The main character is lying in bed, discussing her mental health with a doctor who sits at her bedside. 2 (center): The main character is sleeping peacefully in a hospital bed. 3 (right), top panel: A warm handshake radiates good vibrations. Bottom panel: An empty hospital bed with a hand-written note that says "thank you" on its pillow. In the margins/borders of the page, a moon and sun radiate in the background, while new flowers bloom after the drenching storm of the previous images.
(Oona Zenda/Ñî¹óåú´«Ã½Ò•îl Health News)

When it came time for me to use our mental health safety net, I was among the fortunate ones: At noon the day after my hold began, a bed opened at a hospital in Denver — a rare stroke of luck in a system in which many people wait days or weeks for the care they need. An ambulance transferred me to the hospital at 3 p.m., marking 21 hours into my 72-hour hold.

Two days later, on my last day at the psychiatric hospital, I stood outside the nurse’s station awaiting discharge papers.

A man I had not seen before looked at me and asked, “Are you leaving?”

“Yes,” I said. “Are you being admitted?”

“Yeah,” he responded. “This is my third time being hospitalized in a year.”

I shook his hand. “Good luck,” I said, and I walked out the door.

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/health-industry/psychiatric-bed-shortage-overburdened-health-system/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Affordable Care Act Insurers Want More Premium Increases as Enrollment Sags /insurance/priced-out-obamacare-affordable-care-act-aca-premium-increases-peterson-kff/ Wed, 08 Jul 2026 09:01:00 +0000 /?p=2257679 For the second year in a row, many Affordable Care Act insurers are proposing double-digit premium increases, driven by rising medical costs as well as policy changes by Congress and the Trump administration.

In preliminary filings with state regulators, insurers are seeking a median rate increase of 14% for 2027, according to in 16 states and the District of Columbia by the Peterson-Ñî¹óåú´«Ã½Ò•îl Health System Tracker.

If those rates are ultimately approved, it would be the second-highest increase since 2018.

That would be a “triple whammy“ for consumers, said Cynthia Cox, a senior vice president and the director of the Program on the ACA at KFF, because they have already had to pay higher premiums in 2026 and saw the expiration of more generous tax credits to offset their premiums at the end of last year.

President Joe Biden sought to bolster the program known as Obamacare by enacting more generous tax subsidies, driving down out-of-pocket costs for consumers and increasing enrollment to more than 20 million Americans. But under President Donald Trump, Republicans have sought to scale back taxpayer support for ACA coverage, allowing the Biden-era enhanced subsidies to expire.

As of February, ACA enrollment had fallen by about 3 million people compared with the same time last year. While Cox and other policy experts say that’s because increased costs for the plans drove out people who feel they can get by without insurance, the Trump administration asserts that much of the enrollment growth under Biden .

The main factor driving proposed premium increases for 2027, as in most years, is the rising cost and use of medical care.

There’s growing demand for costly specialty medications and for the weight loss drugs known as GLP-1s, the Peterson-KFF report notes.

But the report also said that about 4 percentage points’ worth of the premium increases insurers proposed are due to lasting effects of the expiration of enhanced subsidies. Insurers expect that with young and healthy people leaving the program rather than paying higher premiums, their remaining customers will be older, sicker, and therefore costlier on average.

 “It’s likely that the people who dropped their coverage were also the healthier people, because sicker people were probably going to try to make it work however they could, to stretch their budget to keep their health insurance,” said Cox, of KFF, a health information nonprofit that includes Ñî¹óåú´«Ã½Ò•îl Health News.

In their rate filings, some insurers also said they had to raise premiums partly because of policy changes by the Trump administration that are expected to make it harder for some people to enroll.

Together with the expiration of the larger subsidies, the new rules “account for 12.7% of the requested rate change,” the insurer UnitedHealthcare wrote in its rate filing with New York state, according to the Peterson-KFF report.

“It is not surprising insurance conglomerates that profited massively off of Biden-era fraud are complaining about efforts to clean up the program,” White House spokesperson Kush Desai said in a statement. He added that the administration “has made it clear that it will not follow its predecessors in giving out taxpayer funded subsidies to big insurance companies through the form of fraudulent and corrupt policies” and that it would “hold big insurance companies accountable.”

Another driver of higher premiums cited by several insurers is that claims submitted on behalf of patients have tended to be for more intense — and costly — levels of care than in the past. Such increased severity may be because patients are actually sicker, or it may reflect that hospitals or doctors are using artificial intelligence to find billing codes that can maximize their payments, the report noted.

The use of AI to maximize bills is also a factor driving up the cost of health coverage offered by employers, the consulting firm PwC, which has forecasted that the cost of caring for people with job-based coverage will rise by 9% in 2027.

In the ACA, premium increases will primarily affect enrollees with incomes just above 400% of the federal poverty level, amounting to about $62,600 this year for an individual. That’s because they’re no longer eligible for subsidies following the expiration of the enhanced tax credits.

People below that level get tax credits to help pay their monthly premium, based on how much they earn and the cost of a “benchmark” ACA plan where they live. As a result, as premiums rise, so do subsidies, shielding many consumers from rising prices but also raising costs for the federal government.

They may have to shop around when enrollment opens for 2027 coverage in October, however. Depending on their particular plan’s premium, they may need to switch plans to keep premiums fixed, said Matthew Fiedler, a senior fellow at the Brookings Institution.

Ñî¹óåú´«Ã½Ò•îl Health News senior correspondent Julie Appleby contributed to this report.

Are you struggling to afford your health insurance? Have you decided to forgo coverage? Click here to contact Ñî¹óåú´«Ã½Ò•îl Health News and share your story.

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/insurance/priced-out-obamacare-affordable-care-act-aca-premium-increases-peterson-kff/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Patients Face a Thicket of Red Tape Trying To Maintain Consistent Health Coverage /health-care-costs/priced-out-red-tape-insurance-costs-health-system-plan-switching-disruptions/ Wed, 08 Jul 2026 09:00:00 +0000 /?p=2253746 By the time Derion Blackman collapsed in front of a Dollar General in Kissimmee, Florida, in March, he had been waiting two months to regain access to some of the vital medications he’d been taking since undergoing a heart transplant two years ago.

“He was on a nasty, dirty ground in front of a store,” recalled Sonja Smith, who is enraged about the circumstances that led to her husband’s heart failure. “He didn’t deserve to die like that.”

Problems started last year when the couple learned the monthly premium payment for their Federal Employees Health Benefits plan would more than double to $307 and their deductible would also go up. They decided to switch Blackman’s primary coverage to CHAMPVA, a health benefits program for dependents of disabled veterans, which had no premium and a $3,000 deductible.

Smith thought she and Blackman had carefully prepared so that the transition between health plans would be seamless. It was anything but.

After the new health plan became active in January, Smith said, Blackman faced one hurdle after another getting approval for the antirejection medications needed to prevent his body from attacking his transplanted heart. Patients who rely on these drugs can develop severe and life-threatening heart issues if they miss even a few days. She said Blackman had enough medication to last only about a month into the new plan year. He told her just before his death that he had run out.

“I screamed at CHAMPVA. I screamed at the Trump administration. I screamed at the overall healthcare system in this godforsaken country,” she said. “Everybody played a part in what happened to my husband.”

A selfie of a husband and wife smiling together.
Derion Blackman pictured with his wife, Sonja Smith. Blackman died from heart failure after waiting two months for his new insurer to approve the expensive medications he had needed to take daily since undergoing a heart transplant two years ago. (Sonja Smith)

The Department of Veterans Affairs declined to comment on the record about Blackman’s case.

While the couple’s situation was extreme, their challenge of trying to continue a treatment is faced by many who shop for cheaper options as health insurance costs have soared across the country. The United States already has a fragmented health system, in which insurers, clinicians, and drugmakers are largely left on their own to hash out the cost of each medication or service. That lack of standardization leads to layers of bureaucracy for patients; moving to a new plan can ensnare patients in a thicket of red tape, keeping them from care.

Making matters more challenging, Congress didn’t renew covid pandemic-era subsidies that helped lower premiums for Affordable Care Act marketplace plans before this year. The Trump administration is also adding hurdles for people to access Medicaid, a state-federal health insurance program for Americans with low incomes or disabilities, so more people may lose their current coverage.

“We’ve basically set up a series of cracks in our healthcare system that we ask people to jump over,” said , an assistant professor of health policy at the Harvard T.H. Chan School of Public Health. “But if you don’t jump over those cracks, you can lose coverage, or lose access to your doctor, or lose access to your medications.”

‘This Is a Lot’

Insurers calibrate plan prices by negotiating rates with individual clinicians, hospital systems, and drugmakers, leading to varying levels of coverage. Plans with lower monthly costs of doctors and hospitals, and less generous drug coverage.

As a result, when patients choose an insurer — or even a new plan with the same insurer — they may lose access to medications or doctors that they have had for years, said , a research professor in health policy at Georgetown University. There are so many ways “patients could get tripped up,” she said. “When you switch to a new insurance company, they’re going to apply their rules.”

In announced by the Trump administration last year, many insurers voluntarily agreed to reduce some red tape by honoring existing prior authorizations for 90 days when a patient switches health plans. As required by law, they also offer resources such as plain-language plan descriptions and searchable online clinician directories to help patients coordinate care, according to , the main health insurance industry trade group.

“The goal is to ensure every member understands their benefits and can access the care they need without interruption,” said Conner Coles, an AHIP spokesperson.

But patients say understanding their benefits can still be a challenge.

Monique Acosta, 54, had to navigate two health insurance changes after she was laid off from her job at a disability nonprofit in October. The heart transplant recipient and cancer survivor said she paid nearly $900 a month to continue her employer coverage under COBRA, the Consolidated Omnibus Budget Reconciliation Act. Then, in January, the Woodbridge, Virginia, resident switched to Medicaid.

During the transitions, Acosta said, she lost coverage for a postchemotherapy drug. So, she changed her care team to qualify for lower-cost medications through a local hospital’s charity program. Then one of her new doctors reduced the frequency of an injection she had gotten for years. During that time, she said, her red and white blood cell counts plummeted and she struggled to recover from a heart catheterization procedure.

Eventually, her new physician upped the frequency of her injections back to twice a month. “He needed to document it so he could see it himself,” Acosta said. “I was very, very fatigued, very weak, and it’s unnecessarily so.”

Acosta said she is putting off a mammogram until she can better understand her Medicaid plan or find a job with better benefits. “This is overwhelming,” she said. “This is a lot.”

Burden on the Patient

Federal regulations, 43 states, and Washington, D.C., have that require health plans to continue covering doctors and drugs when there is a network change, like when a clinician or hospital that a patient goes to is terminated from the insurer’s network of providers.

But Corlette said that not all the protections address the trip wires people face when they switch insurers on their own, such as during open enrollment or after a major life change.

Still, people can be proactive in a few ways about maintaining care when they change plans, said Shelli Quenga, an insurance agent in South Carolina.

She advises patients to keep written records of their medical and drug history for new providers. Quenga tells her customers to get their new insurance information to their doctors as soon as they switch, not to wait until an appointment. In addition, she said patients can request a case manager with their insurer so they don’t have to repeat their concerns to different staffers.

Even when a patient does homework, doctors can drop out of a network and insurers can change the contours of their plans, McIntyre said.

“Nobody has an incentive to make it make sense,” she said. “This puts a lot of burden on the patient.”

They Switched to a Lower-Cost Plan. Then the Bureaucracy Battle Began.

Sonja Smith, 50 
Kissimmee, Florida 

Sonja Smith and her husband, Derion Blackman, switched insurers last year when the premium payments for their previous plan were set to more than double. The couple planned to make the transition seamless. But after the new health plan became active in January, Smith said, Blackman faced one hurdle after another getting approval for the antirejection medications needed to prevent his body from attacking his transplanted heart. In mid-March, Blackman collapsed and died.  

“I screamed at the overall healthcare system in this godforsaken country,” Smith said. “Everybody played a part in what happened to my husband.” — Renuka Rayasam 

The cost-sharing program Blackman was part of, which has about , doesn’t work like traditional insurance. It has no networks or third-party appeals process, according to Caira Benson, a staffer at Code of Support Foundation, an organization that supports veterans. Instead, the program covers part of a patient’s cost of care.

Blackman qualified for the program because Smith was declared permanently disabled due to physical and mental injuries she sustained following an assault on an Air Force base during her service. CHAMPVA was Blackman’s secondary insurance previously.

One of his medications was about $800 a month, more than half his disability check. Knowing that these heart medications were crucial, Smith said, the couple in November called CHAMPVA, which she said confirmed it would cover the drugs. But they still got caught in red tape.

CHAMPVA had Blackman’s previous insurance listed as his primary, even though he had canceled that plan. That took six weeks to resolve. Some but not all of his medications came, because the health plan said his provider needed to clarify his prescriptions.

“Now I’m left here trying to piece together all the things that happened,” Smith said.

And she is full of regrets, too.

“I would have kissed him one more time before he walked out the door,” she said through sobs. “I feel so cheated.”

Ñî¹óåú´«Ã½Ò•îl Health News South Carolina correspondent Lauren Sausser contributed to this report.

Are you struggling to afford your health insurance? Have you decided to forgo coverage? Click here to contact Ñî¹óåú´«Ã½Ò•îl Health News and share your story.

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/health-care-costs/priced-out-red-tape-insurance-costs-health-system-plan-switching-disruptions/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Copay Assistance Is Meant To Defray Patient Drug Costs. Some Insurers Keep It Instead. /health-care-costs/copay-accumulator-adjustment-programs-patient-assistance-insurance-pharma-drugs/ Tue, 07 Jul 2026 09:00:00 +0000 /?p=2250564 For 16 years, Larry Gruber, a fitness coach from Wilton Manors, Florida, received a coupon card to help him pay for a psoriatic arthritis medication he needs that costs more than $7,700 a month.

Each year, Amgen, which makes the drug, called , sent the coupon card worth thousands of dollars, and that counted toward Gruber’s health insurance deductible and out-of-pocket maximum.

Using the card, Gruber usually met that maximum by February, leaving his health insurance to fully cover his in-network medical costs and reducing his cost for the drug to $0 for the rest of the year.

But this year, his new health insurer, , pocketed the coupon card and required Gruber to pay for the drug until he satisfied the cost-sharing requirements on his own.

If Oscar Health had applied Amgen’s coupon toward Gruber’s cost sharing, he would have been on the hook for about $3,000 in covered services. Without it, he had to use his savings to meet the plan’s $10,600 out-of-pocket maximum.

“The real insult here is that they’re taking the money that’s intended to help you,” said Gruber, who had planned to buy a home next year with his savings. “I feel desperate, pressed against the wall, and squeezed.”

Oscar Health is one of many commercial health insurers that use what are often called copay accumulator programs to keep funds that are meant to defray patients’ out-of-pocket costs for expensive specialty drugs. Over the past decade, more insurers have to reduce their prescription drug costs, according to Avalere Health, a consulting company.

Patients who rely on copay assistance from drugmakers are typically heavy users of healthcare for whom delays in treatment or worsening conditions can lead to higher costs, according to patient advocates.

, Florida market president for Oscar Health, did not comment on the specifics of Gruber’s case. He said the company uses copay accumulators to manage rising medical and prescription costs and “to keep monthly premiums as low as possible.”

Drugmakers argue that insurers and pharmacy benefit managers use copay accumulators and other strategies to delay or deny care and steer patients toward medicines that insurers prefer instead. Insurers counter that coupon cards and other patient financial assistance from drug manufacturers drive up premiums and encourage patients to use higher-priced, brand-name drugs instead of less-expensive generics.

Meanwhile, patient advocates say it’s difficult for consumers to find out if their plan uses a copay accumulator or to understand how they work. Not only do the programs make medications unaffordable for consumers, critics argue, but they allow insurers to double-dip.

“They’re collecting the money twice and they’re hurting patients,” said , executive director of the HIV+Hepatitis Policy Institute, a patient advocacy group.

“Why does it make a difference to Oscar if they get the money from a drug company or, you know, his mother or him?” he said of Gruber’s experience. “They’re still getting the money.”

Larry Gruber stands in front of a mirror at a gym, his arms extended on both sides, stretching. Blurred arms in the foreground show students copying his move.
Gruber teaches a fitness class. (Scott McIntyre for Ñî¹óåú´«Ã½Ò•îl Health News)

Controlling Costs or Harming Patients?

Not all insurance types use copay accumulators. Medicare and Medicaid prohibit copay assistance because federal anti-kickback laws forbid drug manufacturers from offering financial incentives to influence patients’ choices. And the Internal Revenue Service prohibits such help for high-deductible plans with health savings accounts. But individual and commercial group plans can use them.

Regulation of copay accumulator programs has fallen largely to states, which oversee individual and small-group plans sold on the Affordable Care Act marketplace.

For 2026, of ACA marketplace plans have such a program, according to a review from The AIDS Institute, a nonprofit group that opposes the programs. Of the 16 insurers that sell plans on the marketplace in Florida, 10 use copay accumulator programs, the review found.

Patients who take brand-name specialty drugs for conditions such as autoimmune disorders, multiple sclerosis, diabetes, HIV, and cancer are most likely to encounter these programs. Health insurers say that making patients share the costs for specialty drugs encourages them to choose value over brand.

But Gruber doesn’t have a choice because there is no medically equivalent generic for Enbrel. Gruber’s livelihood as a trainer depends on his athleticism. The weekly injections, which he has to take for the rest of his life, prevent his joints from getting stiff. When he was diagnosed in 2010, Gruber said, he couldn’t shake hands or lift his knee to get into bed. Without treatment, he said, “I ache from my neck down to my toes.”

A close-up shot of Larry Gruber's hand holding up an injector for Enbrel.
Gruber’s new health insurer won’t apply a coupon card for Enbrel, making him spend $10,600 to meet the cost-sharing requirement. (Scott McIntyre for Ñî¹óåú´«Ã½Ò•îl Health News)

If manufacturers priced their drugs affordably, patients like Gruber wouldn’t need financial assistance, said , a senior vice president for AHIP, a trade association representing insurers.

“Drugmakers offer short-term ‘discounts’ to justify overcharging Americans in the long term, driving up healthcare costs for everyone,” he said in a statement. “Research shows limiting copay coupons can reduce premiums and lower consumers’ out-of-pocket costs.”

Sarah Ryan, a spokesperson for Pharmaceutical Research and Manufacturers of America, a trade association for the pharmaceutical industry, said copay assistance helps patients access medications free of charge or at reduced cost.

“Health insurance is supposed to protect patients,” Ryan said, adding that insurers and pharmacy benefit managers that refuse to count copay assistance toward cost sharing are “leaving patients facing unexpected costs and disrupting their care.”

Insurance companies already have tools to control costs without keeping financial assistance intended for patients, said , deputy executive director for The AIDS Institute.

Insurers choose what drugs to cover, whether they are medically necessary, and if a patient must try a cheaper alternative first.

“They are the ones making the decisions,” Klein said. “Now the individual is left trying to figure out how they’re going to pay for it.”

Consumers Stuck in the Middle

Larry Gruber stretches both arms upward, hands clasped together. A blurred figure in the foreground does the same stretch, framing his face.
Weekly injections of Enbrel prevent Larry Gruber’s joints from getting stiff, which is vital for his work as a fitness coach. The drug costs more than $7,700 a month, and he has to take it for the rest of his life. (Scott McIntyre for Ñî¹óåú´«Ã½Ò•îl Health News)

Before moving to Florida in 2024, Gruber said, he had bought coverage on the ACA marketplaces in Illinois and Louisiana, which prohibit copay accumulators. Gruber said he hadn’t encountered one until his experience with Oscar Health.

He complained to the office of Florida’s insurance consumer advocate, which informed him that the practice is legal in the state and that Oscar Health had disclosed its use of a copay accumulator program. Page 127 of his 168-page evidence of coverage states, “Third party assistance will not count towards your out-of-pocket maximum or deductible.”

Gruber said he selected his coverage using a tool on that listed all the Florida ACA plans that cover Enbrel. “I always choose the one with the highest deductible to get the lowest premium,” he said, “because I know I’m going to meet it.” His monthly premium is about $315 after subsidies.

Adding to Gruber’s confusion, he said, was that his patient portal with Oscar Health was counting his coupon card at first. He said he met his out-of-pocket maximum in February, and in March Oscar covered all the cost for the medication.

But when he ordered his refill for April, the pharmacy told him that Oscar would cover only $1,000 of the medication’s cost for that month. He would have to pay the remaining $6,700.

Gruber then received a letter from Oscar Health, telling him that an incorrect amount had been applied to his deductible.

An extract from a letter that reads, "March 13, 2026. Important information from your health insurance plan. Hi Lawrence. We are reaching out to let you know that we noticed an incorrect amount applied to your deductible for your Oscar health insurance plan. This issue has been corrected."

“They sent me a letter that basically stated they made a mistake,” he said. “The fact that they’re allowed to sort of change things midstream is also, I think, a little galling.”

He began rationing the injections, taking them every other week instead of weekly. By May, he had dipped into his savings to pay for the drug.

States Step Up While Federal Oversight Stalls

The first state laws banning copay accumulators were adopted in 2019, and since then more states have moved to regulate the programs, said , public policy director for the Alliance for Patient Access, an advocacy group.

“The goal is to build upon that progress at the federal level and to continue to drive this momentum forward,” he said.

Twenty-six states, Washington, D.C., and Puerto Rico have adopted laws banning copay accumulators or prohibiting them for drugs that do not have a generic equivalent. Colorado also prohibits copay accumulators for drugs without a biosimilar. In states that have not banned or restricted the programs, insurance companies decide whether to use them.

Half of States Restrict Insurers From Pocketing Copay Assistance (Choropleth map)

But federal regulation of the programs, which would apply to all states, remains at a standstill.

A federal court in 2023 struck down a policy enacted during President Donald Trump’s first term that had permitted insurers to use copay accumulator programs. As a result, the Department of Health and Human Services reverted to that restricts their use to brand-name drugs with a medically appropriate generic equivalent.

After the court ruling, the Biden administration pledged to address copay accumulators in future rulemaking. But HHS has yet to do so, said Schmid, whose group, the HIV+Hepatitis Policy Institute, led a coalition of patient advocacy groups that sued to overturn the rule.

“The Trump administration can stop this once and for all at the national level,” Schmid said. “If they really care about patient affordability, this is something they can do.”

Bipartisan legislation in Congress called the would require financial assistance to count toward deductibles and other out-of-pocket costs on plans regulated by the federal government, including much employer-sponsored coverage.

Schmid said the bill has not gotten “enough traction on the Hill yet.”

Other ways to obtain medication don’t help patients facing copay accumulators either. The president’s , an online platform through which consumers can buy prescription drugs at a discount, requires patients to pay out-of-pocket, and the cost does not count toward their plan’s cost-sharing requirements.

Christopher Krepich, a Centers for Medicare & Medicaid Services spokesperson, said that HHS, along with the departments of Labor and the Treasury, intend to address the issue of whether copay assistance must apply toward health plan cost sharing.

Until then, he wrote, “the Departments do not intend to take any enforcement action against health insurance issuers or group health plans based on their treatment of such manufacturer assistance.”

Outside of government regulation, consumers have few protections or alternatives.

Patients who rely on expensive medications — and who have a choice in their health insurance plan — should research their coverage options and choose wisely so they’re not caught by surprise, Clingham said.

That may mean reading plan benefit explanation packages, contacting their state’s insurance regulator, or calling an insurance company to ask if their plans use copay accumulator programs.

For Gruber, the extra expense means he won’t take a vacation this year. He’s also concerned that the money he was saving for a home will now go to his medication costs instead.

“It’s the first thing I think of when I wake up in the morning,” he said. “If this happens every year, it would be financially devastating.”

Larry Gruber stands outside.
(Scott McIntyre for Ñî¹óåú´«Ã½Ò•îl Health News)

Are you struggling to afford your health insurance? Have you decided to forgo coverage? Click here to contact Ñî¹óåú´«Ã½Ò•îl Health News and share your story.

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/health-care-costs/copay-accumulator-adjustment-programs-patient-assistance-insurance-pharma-drugs/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Thousands of Medicare Beneficiaries Thought Their Drug Plan Was Free. Then They Lost It. /medicare/medicare-drug-plans-part-d-small-premium-increases-disenrollments-wellcare/ Tue, 07 Jul 2026 09:00:00 +0000 /?p=2253783 Jude Pare and his partner, Diane Tix, live in rural Minnesota until temperatures dip below freezing, when they take refuge in Arizona for the winter. While away, their mail is forwarded. But Pare, 77, said he didn’t receive any warning from his Medicare prescription drug plan that his $0 monthly premium was about to increase.

So he didn’t know he had a bill to pay. After he and Tix returned home to Minnesota in April, they got a letter from Wellcare, the insurer that provided his drug plan, saying his coverage had been terminated after three months of unpaid premiums totaling $28.80. Under Medicare’s rules, he can’t enroll in a plan again until the fall, for coverage beginning in 2027.

Pare takes Xarelto, a blood thinner that reduces his risk of strokes, blood clots, and pulmonary embolism. “He could bleed to death without it,” Tix said. A 90-day supply of the drug costs about $1,800 using a coupon from GoodRx, a discount drug website, she said.

Pare is among tens of thousands of Medicare beneficiaries who were on Wellcare’s Value Script drug plan who will likely go without prescription drug coverage for the rest of the year because they didn’t pay premiums for three months.

Next year, thousands more people in 32 states and Washington, D.C., who are enrolled in zero-premium drug plans from Wellcare and other insurance companies may find themselves in the same situation if their premiums go up and they don’t realize it, according to a Ñî¹óåú´«Ã½Ò•îl Health News analysis of drug plan data. Premiums and other changes for 2027 will be unveiled in September.

Going without medication can be life-threatening, especially for Medicare beneficiaries. take one or more prescription drugs, according to the Centers for Disease Control and Prevention. Almost half live with four or more chronic health conditions that can cause functional or cognitive impairments.

By the time Jude Pare and his partner, Diane Tix, found out he owed $28.80 for three months of drug plan premiums, his coverage had been canceled. He is among tens of thousands of Medicare beneficiaries who will likely go without prescription drug coverage for the rest of the year after their drug plans were canceled. (Diane Tix)

Congress added prescription drug coverage to Medicare in 2003. But the coverage is administered by commercial insurance companies, which compete fiercely with one another for the business of about enrolled in drug plans.

Zero-dollar or very low monthly premiums have helped make Wellcare’s Value Script the bestselling stand-alone prescription drug plan in Medicare, with nearly 6 million customers across the U.S., according to government data. But in 26 states and Washington, D.C., some Value Script members who didn’t have to pay a premium last year were caught off guard by increases in 2026.

After a two-month grace period — which Wellcare extended to three — Medicare drug plans can drop customers who don’t pay their premiums, no matter how small the amount. Some members who lost their coverage in Nevada, for example, owed as little as $8.10 for three months, according to a Ñî¹óåú´«Ã½Ò•îl Health News analysis of Medicare drug plan data.

Wellcare terminated coverage for about 140,000 Value Script beneficiaries in April, according to a person with knowledge of the matter who was not authorized to speak publicly about it and feared reprisals at work for doing so. About 40,000 of the people who were dropped may be able to enroll in new coverage immediately because they have low incomes and receive financial assistance through a program Medicare calls “.”

Multiple state officials said they had heard the same disenrollment figures, including Nevada’s insurance commissioner, Ned Gaines, who chairs the National Association of Insurance Commissioners’ senior issues task force; Rebecca Gouty, director of the State Health Insurance Assistance Program in West Virginia; and Tim Smolen, director of Washington state’s Statewide Health Insurance Benefits Advisors. The West Virginia and Washington initiatives are part of the federally funded , or SHIP, which provides free, unbiased help navigating Medicare.

Surprise Bills

The Centers for Medicare & Medicaid Services, which oversees Medicare drug plans, declined to provide the number of Value Script members who lost coverage due to unpaid premiums. “The agency does not publicly provide plan-specific disenrollment figures or state-level breakdowns related to the non-payment of premiums,” Christopher Krepich, a spokesperson, said in a written statement to Ñî¹óåú´«Ã½Ò•îl Health News.

Centene Corp., Wellcare’s parent company, also declined to provide disenrollment numbers.

“We recognize how disruptive a loss of coverage can be and are committed to helping members understand their options,” said Sarah Baiocchi, senior vice president for specialty and prescription drug plans at Centene. She acknowledged that “some members in our Value Script plan experienced a premium for the first time, or for the first time in several years.”

Baiocchi said all Value Script members received a CMS-required annual notice of changes in September, before the premium increases took effect.

A sent to members in two states and Washington, D.C., is 21 pages long. The new premium is mentioned on pages 3 and 8, along with changes to out-of-pocket costs and how to find updates on covered drugs and network pharmacies.

The company also informed members about 2026 premium changes through phone calls, text messages, regular mail, or email, Baiocchi said.

People who are dropped are not able to reenroll or join another drug plan until the start of the open enrollment period this fall for coverage beginning Jan. 1, unless they qualify for an exception, Krepich said. And because they will have gone without coverage for at least 63 days, they could be hit with a permanent that increases every year for the rest of their lives.

“Medicare should be doing something about this so that we can go ahead and get coverage now,” said Wayne Bennett, 74, who lives in Durham, North Carolina.

In May, he found out that Wellcare had canceled his Value Script plan because he hadn’t paid his $3.60 monthly premiums. He takes nine prescription drugs to treat his blood pressure, glaucoma, chronic obstructive pulmonary disease, and other health problems. He filled most of his prescriptions — including several at no cost — before he lost coverage. He doesn’t know what he’ll have to pay when his supply runs out.

Gouty, the West Virginia program head, said many Medicare beneficiaries arrange for their monthly drug plan premium to be automatically deducted from their Social Security benefits, and that many likely thought that choice remained in place until they changed it.

“They didn’t realize that when the plan was a zero premium in 2025, that stopped the Social Security premium deduction and they would have had to reelect it for 2026,” Gouty said.

In other words, even if they mistakenly thought the premium was still zero, Medicare beneficiaries would have needed to somehow allow Social Security to make deductions — something the agency doesn’t do — or set up a payment plan through their bank or credit card in case payment was necessary.

“That sounds goofy,” Tix said.

Centene’s Baiocchi blamed the Social Security Administration for the problem: “We believe this was a key driver of non-payment disenrollments and subsequent complaints.”

Spokespeople for the agency referred questions about the matter to CMS.

Krepich said legal requirements for drug plan enrollment and disenrollment limit what CMS can do to help beneficiaries who lose coverage for not paying their premiums.

‘Pretty Upset’

Now that Pare has no prescription drug coverage, his doctor replaced his blood thinner medication with a much less expensive drug that should be just as effective. Pare paid $111 for four other medications that used to be free under his Value Script plan. He hasn’t had to refill four more prescriptions yet and doesn’t know what they will cost, Tix said.

If Wellcare members knew about the premium increases, they could have set up direct billing or an automatic payment plan early this year before the payment grace period ended April 1. But they would have been able to fill prescriptions during the grace period, so if they didn’t see Wellcare’s notices, they likely assumed there was no problem with their coverage.

Bennett, the North Carolina man, said Wellcare used to send him text messages with health tips and reminders when it was time to pick up a prescription. He didn’t know his premium had increased from $0 to $3.60 until it was too late.

An older man with white hair stands with his arms crossed.
Wayne Bennett lost his Medicare drug coverage because he didn’t pay the premium, which was free last year but — without his knowing — went up this year. “Medicare should be doing something about this so that we can go ahead and get coverage now,” he says. (Wayne Bennett)

“I was pretty upset,” he said, when he called the company. “The premium wasn’t that much, and I was ready to pay it right off the bat. I had my credit card out ready to make the payment.”

The customer service representative wouldn’t let him pay because his coverage had been canceled, Bennett said.

Hoping to restore it, Bennett called , a Durham nonprofit that advises Medicare beneficiaries and is one of more than 2,200 SHIP sites across the country. He was told he must wait until January to restart his drug coverage, said the group’s executive director, Gina Upchurch.

He doesn’t qualify for the “Extra Help” low-income subsidy or meet other CMS criteria for a , which would allow him to change drug plans during the year. CMS typically allows midyear switches for beneficiaries who, for example, move out of their plan’s service area, experience a natural disaster, or get help paying for drugs from a .

Senior PharmAssist was able to help one of its participants join another drug plan after she lost Value Script coverage because she is in North Carolina’s pharmacy assistance program for people with HIV/AIDS and has limited income, Upchurch said.

A further exception allows any Medicare beneficiary to enroll at any time in a drug plan that has earned five stars, the top grade in Medicare’s performance ratings. However, there are no five-star Medicare drug plans available to the general public. Only two insurers offer five-star plans, and only for retirees from certain employers. Their combined enrollment is about 8,700 as of June 1, according to the insurers.

But Upchurch, with more than two decades of Medicare expertise, doesn’t blame beneficiaries for not paying attention or for assuming Wellcare’s messages were bogus. Older adults are particularly vulnerable to identity theft and other scams and are often advised to ignore junk mail and calls from telemarketers.

Since Value Script members such as Bennett continued to get their prescriptions filled during the payment grace period, “why wouldn’t they think this was a scam?” Upchurch asked. “They are constantly bombarded by people selling them something that’s illegitimate or trying to scam them.”

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/medicare/medicare-drug-plans-part-d-small-premium-increases-disenrollments-wellcare/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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In California Governor’s Race, Voters Face Stark Choice on Immigrant Healthcare /elections/california-governor-becerra-hilton-immigrant-healthcare-medicaid-medi-cal/ Mon, 06 Jul 2026 09:00:00 +0000 /?p=2252202 For decades, Californians have generally said that immigrants, who make up of the state’s population and of its labor force, are beneficial to the state and its economy. But budget instability and concerns about rising costs are spilling into a debate over the controversial and expensive policy of allowing low-income immigrants without legal status to receive state-funded health coverage.

Now, Democrat Xavier Becerra and Republican Steve Hilton present a stark choice to voters in the race to be the next governor at a moment when public support for the state’s generous safety net is starting to fray.

Both frame the choice as an economic one.

Becerra, former secretary of Health and Human Services under President Joe Biden, has to exclude the poorest immigrants from routine care and push them into expensive emergency rooms . Hilton, a conservative commentator backed by President Donald Trump, has promised to eliminate their coverage and has echoed national Republicans who have to bolster their claims of fraud and abuse in the Medicaid program.

With voters nationwide worried about inflation and the rising cost of living, some Californians might feel less inclined to provide full healthcare coverage to those lacking legal status. What the state does next could have profound implications for its healthcare system and sprawling economy.

Over the past decade, California lawmakers used state dollars to expand Medi-Cal, offering all low-income residents comprehensive coverage regardless of immigration status. But enrollment surpassed initial projections, as did the cost. Medi-Cal coverage of immigrants without legal status costs the state roughly , according to California’s nonpartisan Legislative Analyst’s Office, more than double the initial estimates.

California lawmakers and Democratic Gov. Gavin Newsom, who , have approved major rollbacks of benefits for those residents. They said the state can’t afford ballooning healthcare costs amid massive federal cuts from the GOP tax-and-spending law known as the One Big Beautiful Bill Act; the California Health and Human Services Agency projected up to 3.4 million Medi-Cal enrollees and the state could lose more than $30 billion a year in federal funding under the law, causing major disruptions in the safety net health program.

Medi-Cal’s budget for the 2026-27 fiscal year is $217 billion, and the program serves more than 14 million Californians.

Meanwhile, many legal U.S. residents and citizens have seen their health premium payments skyrocket this year after Congress let enhanced federal Affordable Care Act subsidies expire at the end of December.

As the state grappled with a deficit last year, a majority of likely voters in California said — for the first time in nearly a decade — that they opposed providing health insurance to immigrants without legal status, by the Public Policy Institute of California.

“The state faces major challenges, and healthcare is one of the major expenditures,” said Mark Baldassare, PPIC survey director. “People have become more selective about how they want to see those limited healthcare dollars spent.”

Hilton, running on a platform of affordability and lowering taxes, has seized on the sentiment, casting health coverage for immigrants without legal status as and a to the state’s ability to help citizens.

“Stop taking money from California taxpayers who can barely afford their healthcare to give free healthcare to citizens of other countries who shouldn’t even be here,” Hilton said in a the morning of the June 2 primary.

In campaign stump speeches, to use the savings to for other Californians without detailing how. Hilton did not respond to requests from Ñî¹óåú´«Ã½Ò•îl Health News for comment.

“Their messaging is very, very simple: It’s an us vs. them,” said Roger Salazar, a Democratic political consultant who represents a coalition of healthcare advocates who argue providing coverage to people who can’t afford it strengthens the workforce and, as a result, the economy. “It’s just a question of convincing the average voter that it’s much better economically.”

A son of immigrants, Becerra for decades pushed to in Congress and has made a similar pitch in his campaign for governor. He did not respond to requests for comment.

“Immigrants, whether documented or not, work hard. They pay taxes, and sometimes they get injured on the job or their children get sick,” during a debate in May. “It would be foolish to tell a family that they don’t have access to the pediatrician or the family doc.”

Becerra, who could become California’s first elected Latino governor, when Newsom and legislative leaders decided to for adults without legal status, cut benefits, and impose monthly premiums.

“Stop treating coverage as a budget variable that expands in good years and contracts when revenue dips,” Becerra wrote in May in response to an Orange County Register . He has new, steady revenue to fund basic services, such as by upping taxes on corporations and the wealthiest Californians.

In 2023, California was home to about 2.3 million people without legal status, representing of the state’s labor force, according to the . And live in a family that includes at least one member without legal status, according to the California Department of Education. Healthcare economists say giving people access to preventive healthcare saves taxpayers money in the long run by and relieving pressure on an overburdened system.

That, Baldassare said, wasn’t a hard argument to make during the covid pandemic, when immigrants were and the link between individual well-being and public health .

But Medi-Cal costs to cover roughly 1.4 million immigrants , according to the latest estimates from the Department of Health Care Services. Because only some lawfully present immigrants are eligible for federal Medicaid benefits, states like California must do so exclusively with state funding.

California’s budget experts that maintaining full Medi-Cal coverage for immigrants without seeking additional revenue would destabilize the state’s long-term fiscal outlook.

In a legislative hearing last year, Republican Assembly member Carl DeMaio questioned whether California taxpayers would prioritize the expansions, saying he doubted “illegal immigrant healthcare in the general fund would be at the top of their list.”

After lawmakers approved the spending reductions, support for immigrant health coverage dropped, Baldassare said. Democratic lawmakers and Newsom  several Medi-Cal cuts until July 2027, leaving decisions for the next governor.

David Hayes-Bautista, who has spent his career studying the economic contributions of Latinos and immigrants, said Californians without legal status and tend to work in industries and occupations that . As a result, many resort to Medi-Cal, saddling the state with the healthcare costs instead of employers.

“California, as a state, has the world’s fourth-largest GDP, which is true thanks to Latinos,” said Hayes-Bautista, director of the Center for the Study of Latino Health and Culture at UCLA. Without contributions from Latinos, many without legal status, it drops to eighth place, about the size , he added.

Immigrant advocates hope to have a more vocal champion in Becerra, the favorite to become governor in a state where Democrats outnumber Republicans nearly 2-to-1.

“He will fight, he will push back, he will do all that he can,” said state Sen. María Elena Durazo, a former labor leader who has championed the immigrant healthcare expansions. “That’s the most we could expect.”

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/elections/california-governor-becerra-hilton-immigrant-healthcare-medicaid-medi-cal/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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New Medicaid Work Rule Means More Opportunities To Lose Coverage /medicaid/wamu-health-hub-audio-medicaid-work-rule-requirement-tips-coverage/ Mon, 06 Jul 2026 09:00:00 +0000 /?p=2254150
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Too sick to work? You may have to prove it. Next year, Medicaid recipients will have to start showing documentation such as a doctor’s note to avoid a new work requirement. Ñî¹óåú´«Ã½Ò•îl Health News correspondent Sam Whitehead broke down the rule and exceptions on WAMU’s Health Hub on July 1.

A man with white hair stands behind a lectern with the seal of the President of the United States on it, and speaks into a microphone.
Centers for Medicare & Medicaid Services Administrator Mehmet Oz. (Daniel Heuer/Bloomberg via Getty Images)

Study, work, or volunteer: That’s what many people will have to do to keep their Medicaid starting next year, according to new rules issued by the Trump administration. But consumer advocates worry the new requirements will catch many recipients flat-footed.

Ñî¹óåú´«Ã½Ò•îl Health News correspondent Sam Whitehead joined WAMU’s Health Hub on July 1 to explain who will be affected, who can get an exemption, and what enrollees can start doing now to prepare.

Ñî¹óåú´«Ã½Ò•îl Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/medicaid/wamu-health-hub-audio-medicaid-work-rule-requirement-tips-coverage/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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