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‘Digital Health’ Not Just For Well-Heeled Fitness Fiends

The Text4Baby app sends free, periodic text messages in Spanish or English to pregnant women and new moms about prenatal care, labor and delivery, breastfeeding, developmental milestones and immunizations. (Kristin Adair/NPR)

When we hear the phrase 鈥渄igital health,鈥 we might think about our Fitbit, the healthy eating app on our smartphone, or maybe a new way to email our doctor.

But Fitbits aren鈥檛 particularly useful if you鈥檙e homeless, and the nutrition app won鈥檛 mean much to someone who struggles to pay for groceries. Same for emailing your doctor if you don鈥檛 have a doctor or reliable internet access.

鈥淭here is a disconnect between the problems of those who need the most help and the tech solutions they are being offered,鈥 said Veenu Aulakh, executive director of the Center for Care Innovations, an Oakland-based nonprofit that works to improve 聽health care for underserved patients.

At most digital health 鈥減itchfests,鈥 it鈥檚 pretty much white millennials hawking their technology to potential investors.

鈥淚t鈥檚 about the shiny new object that really is targeted at solving problems for wealthy individuals, the who already track their health,鈥 Aulakh said. 鈥淵et 鈥 What if we could harness the energy of the larger innovation sector for some of these really critical issues facing vulnerable populations in this country?鈥

A small but growing effort is underway to do just that. It鈥檚 aimed at using digital technologies 鈥 particularly cellphones 鈥 to improve the health of Americans who live on the margins. They may be poor, homeless or have trouble getting or paying for medical care even when they have insurance.

The initiatives are gaining traction partly because of the growing use of mobile phones, particularly by lower-income people to the internet.

The Affordable Care Act and the expansion of Medicaid have added millions of previously uninsured people to the nation鈥檚 health care system, including community health clinics that serve poor and largely minority populations, according to a California Health Care Foundation . (California Healthline is an editorially independent publication of the California Health Care Foundation).

In California alone, the number of people on Medi-Cal, the state鈥檚 version of the Medicaid program for the poor, by early 2015. Many Americans remain uninsured, however, because they live in states that have declined to expand Medicaid eligibility.

Health advocates say it鈥檚 important to tailor digital health technologies to lower-income people not only to be fair, but because they鈥檙e more likely to have chronic illnesses, like diabetes, that are expensive to treat.

Health-care providers have incentives as well. They are being rewarded financially under the Affordable Care Act, Medicare and Medicaid for keeping patients healthy, and this goes beyond simply performing medical procedures and prescribing drugs.

For now, experiments targeting low-income people are a tiny part of the digital health industry, which racked up in venture funding in 2015 alone. Entrepreneurs are still trying to figure out how they鈥檙e going to get paid by serving this population, and government health programs like Medicaid and Medicare how they鈥檙e going to pay providers for approaches that don鈥檛 involve a doctors鈥 visit.

But Jane Sarasohn-Kahn, author of the California Health Care Foundation report, says investors are getting more interested in digital health initiatives for low-income patients simply because there are so many of them.

Investors are eyeing the 鈥渇ortune at the bottom of the pyramid,鈥 she said, much as Walmart profits from selling low-priced items to millions.

鈥淚t鈥檚 now sexy to scale,鈥 she says. 鈥淚f you can have impact [on many people], inexpensively, you can make a lot of money. If we get it right, we can do well and do good.鈥

Some initiatives are simple and cheap, like . The free text-messaging service for pregnant women and new moms offers English- and Spanish-language information about prenatal care, labor and delivery, breastfeeding, developmental milestones, and immunizations 鈥 all timed to the baby鈥檚 due date.

Operated by the nonprofit ZERO TO THREE and the mobile health company Voxiva, Inc., Text4Baby has reached nearly 1 million women since starting in 2010. In , more than half of them reported yearly incomes of less than $16,000.

Other experiments are far more elaborate. In California and Washington state, San Francisco-based is testing a version of Prevent, a diabetes and heart disease prevention program that鈥檚 been modified for 鈥渦nderserved鈥 populations 鈥 basically people on Medicaid or who are uninsured. The free program offers patients a digital scale as well as behavior counseling and education, access to a personal health coach and an online peer network.

To adapt the program, the company made it available in Spanish and English and lowered its reading level from 9th聽grade to 5th聽grade. Bilingual health coaches were hired, and the educational materials now acknowledge potential food access, neighborhood safety and economic issues that participants may face, said Eliza Gibson, Omada鈥檚 director of Medicaid and safety-net commercial development.

The scale doesn鈥檛 require a wireless connection, and the patient just needs to be able to access the internet for one hour each week, Gibson said.

Omada is enrolling 300 community clinic patients in Southern California and rural Washington in a year-long clinical trial of Prevent, in hopes that the program can demonstrably slow the progress of diabetes.

There is a disconnect between the problems of those who need the most help and the tech solutions they are being offered.

Veenu Aulakh

Patients at other community clinics in California will try out the program but won鈥檛 be included in the clinical trial, Gibson said. Omada Health is also offering a version called that specifically targets low-income community clinic patients.

Among the people trying out the program is Susy Navarro, an elementary school substitute teacher who lives in the Spring Valley community east of San Diego. After being diagnosed with prediabetes, Navarro, 28, set an ambitious goal to lose 100 pounds. In the meantime, she is taking medication to stave off Type 2 diabetes.

鈥淵ou name it, I鈥檝e probably tried it 鈥 Weight Watchers, low-fat, low carb, pills, injections, acupuncture,鈥 Navarro said. 鈥淭he first time I try things it goes very well, I feel like I鈥檓 very successful, then I wean off and I鈥檓 not successful. This program focuses more on life choices that are going to help us out long-term, not just for a little bit.鈥

Navarro described the scale she was given as 鈥渟ophisticated looking 鈥 all black, flat, digital.鈥 It has been programmed to her weight profile 鈥 she is considered obese 鈥 and transmits her weight every morning to the program鈥檚 counselors.

The program, with its daily weigh-ins, helps her pay attention to what she eats, and her blood sugar levels are declining, Navarro said. She also appreciates the ability to connect online with fellow patients on her 鈥渢eam.鈥 鈥淚t鈥檚 very awesome 鈥 you get to know the other members and feel like it鈥檚 a team effort.鈥

As they continue to explore digital health possibilities for underserved patients, developers are learning more about what works and what doesn鈥檛, says Sarasohn-Kahn. For example, apps chew up a lot of cellphone data, so many community clinic patients prefer lower-cost text messaging.

At the Petaluma Health Center, a network of community clinics in Sonoma County, Calif., staffers offered free, simplified 鈥渓oaner鈥 digital devices to patients after a hospital stay to help them avoid complications that could land them back in the hospital.

They first offered an Android tablet to allow for a video visit with a health professional, but patients were reluctant to take it, saying it was hard to hide and could be stolen, said Dr. Danielle Oryn, the network鈥檚 chief medical informatics officer.

Then they tried iPhones, in which everything was locked down except the ability to call 911 and a single button triggering the video visit. Those were more acceptable. Still, there were challenges. Would patients, some recuperating at homeless shelters, have access to electricity to charge their phones? Oryn said they had to learn by trial and error. She was surprised and pleased to see seniors accepting the technology. Every loaner iPhone was returned to the clinic.

Oryn鈥檚 advice to the captains of the digital health industry?

They should 鈥渘ot necessarily come in with too many assumptions. They should come with an open mind and a willingness to listen,鈥 Oryn said. 鈥淪afety-net people are very excited to have these companies interested in them and to share their experiences.鈥

This story was produced by , which publishes , a service of the .

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